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I had a relapse from taking Imunovir for 3 weeks that reactivated EBV and HHV6. I slowly improved years after that but never regained my baseline. I also developed OI and became more disabled from that. The immune modulator was prescribed to me by a virologist who did a small study with Dr...

I recovered from the initial virus and my health started improving (80-90%) slowly over the first 5-6 years. The main difference is that I didn't experience PEM or OI during those years.

I don't get dizziness/lightheaded when I go from lying down to standing in general, but I do get blurry vision and head, chest pressure when upright for too long. My BP doesn't drop when sitting/standing or lying down. I have heat intolerance, but not all the time. There is also...

The "PEM" episode I described above was alleviated by rest (2 days). This is not the same as delayed PEM I experience from going over my energy limit and being in distress. Similar pathways perhaps, but not the same.

What do mean by M.E is 'something more'. What you are describing in your case is post-infectious syndrome, not M.E. I had post-infectious syndromes for 5 1/2 years and it was not similar to M.E/PEM.

But PEM isn't alleviated by rest. This is not describing the pathophysiology of PEM as it relates to M.E. Going back to ones baseline after exercise or from over exerting is dependent on how much they have gone over. It can take days, weeks, months or never going back to baseline...

I agree with JE that there is no reason to assume that pwME in particular have low mg stores, malabsorption issues are not uncommon for pw chronic illnesses. I had/have many other deficiencies, not just mg. An interesting thing I observed back in the late 90s and early 2000s is that my...

I took injections back in early 2000 for a couple of years to bring up my mg stores. This is the 'evidence' I based my usage on. I use mg chloride transdermal aloe gel twice a week for the last 12 years. I trust the results from ExaTest who have no financial interest...

And even then it's difficult to know for sure, symptoms might be gone but . . .

Collectively, we believe that our genetic and immunological studies of patients with severe long COVID hold potential for better understanding of this complex condition, and by focusing on severe cases that develop after mild COVID-19, we maximize our chances of success. Our results would...

Moved post Nature correspondence: Studying severe long COVID to understand post-infectious disorders beyond COVID-19 by Petter Brodin et al Collectively, we believe that our genetic and immunological studies of patients with severe long COVID hold potential for better understanding of this...

A friends son (32 yrs old) was seeing a physiotherapist for a couple of years for lower back pain, the physiotherapy wasn't helping, his back pain went away after he told his parents he was gay. He had tried to tell them yrs earlier but they didn't want to accept it and this caused him a...

I don't believe repressed emotions cause disease, but I am open to believing that some repressed emotions can cause physical symptoms. Am I wrong in believing this?

What is the natural recovery rate (w/o treatments) of pw/post-infectious illness in general?

Abstract The balance between oxidative phosphorylation and glycolysis is shifted in a variety of cell types and tissues upon activation, proliferation, and differentiation. However, description of these metabolic switches has been mostly qualitative, particularly upon acute activation signals...

@DokaGirl Secondary causes of restless legs syndrome and exacerbating factors should be recognized and treated This includes managing renal impairment,2 treating serum ferritin below 50 μg/L,3 eliminating antidopaminergic drugs, addressing sleep hygiene, and reducing caffeine and alcohol...

@DokaGirl

This drug is being advertised by Serena Williams on U.S tv commercials.

Abstract Vitamin K2, a natural fat-soluble vitamin, is a potent neuroprotective molecule, owing to its antioxidant effect, but its mechanism has not been fully elucidated. Therefore, we stimulated SH-SY5Y cells with 6-hydroxydopamine (6-OHDA) in a proper dose-dependent manner, followed by a...

Improving aerobic capacity isn't recommended for every type of 'fatigue' syndrome under the sun :emoji_rolling_eyes: