Search results

Probably yes, either.

Per Julin has published with Jonas Blomberg which suggests a serious biomedical interest.

I think the basic issue here is that there is a compromise between making the most rational assessment you can and trying to protect the process from cherry picking. NICE have predetermined policies for the latter, which is good in many ways, although it will lead to blunted decision-making...

It may have been well intentioned but it might be more honest to just say 'I don't know'.

Fairy nuff.

I keep wondering if I have been duped into being overcritical by patient activists. And then I see the garbage produced by the defenders of GET. I stop wondering. That's almost good enough to tweet.

Harm needs to be proved by objective tests. I would like to see someone admit to having made that statement! Harm is almost universally established as likely on the basis of otherwise unexplained correlations at a statistical level. What objective tests show that smoking causes lung cancer?

My response to that is that it doesn't really mean anything, just as biopsychosocial doesn't really mean anything. The intention is the same I think - to evade.

I am unclear how this fits in to the critique. I agree that illness and disability are typically assessed using subjective measures but that misses the point. The point is that fitness is NOT a measure of those so objective evidence of fitness does not indicate an improvement in the illness.

They do not need to be on the committee at all. They should be asked to submit evidence but professionals in other medical fields should be perfectly able to decide what is valid evidence. This is how a court of law works, and it tends to work very well (in Europe) in my experience.

If I remember correctly CIC attended the RT by Zoom. I am not in a position to repeat anything specific but she was involved in a discussion in which there was strong agreement with emphasis from the committee officers that patients' concerns about safety should be taken seriously. There was...

All we have really heard from any of these people is: 'My patch needs to be bigger - and don't you dare step on it'. Rehab, psych, LP, GP, ...

Just to remind ourselves how dumb some seem to be: So, children, why do we blind trials? Because the outcomes might be biased by subjectivity, Sir. Well done children. So which trials specifically need blinding. Trials with subjective outcomes, Sir. Very good! Shall we just go over that...

if the person never considers or discusses increasing the activities they undertake, then the person can never get better. This is very revealing. It assumes that getting better is mediated by doing more - exactly the false premise I put in my testimony. Why shouldn't someone get better while...

From Dr Kevin Lee I’ve never seen statements from doctors colleges so unsympathetic, lack of recognition of patient advocacy groups, paying so little respect to evidence based findings from non-doctor stakeholders. Actually the evidence-based findings came from the NICE staff (not stakeholders)...

I suspect because stepping down in advance of agreement would have called for some sort of valid explanation, as would refusing to agree. Stepping down afterwards could be done without that. From what I have heard the chair and vice-chair were at great pains to listen to all members and respond...

As indicated on some other thread, I have, at least for the moment, been imbued by the (biological) motivation to write my book again. It will of course have a chapter on the NICE guidelines. It will also have a chapter including the ongoing inability of researchers and clinicians to understand...

Malcolm McLeod is another person to think of. He has waded in for SMC in the past. There is a nice irony that his inaugural professorial lecture was on how not to do bad science.

Well said, Asad.

There is a rehab physician organisation, which I think L T-S is head of. We had people from BACME and CSP and OT so it wasn't just Royal Colleges. The annoying thing is that rehab got brought in by RCP despite rehab being pretty irrelevant to ME - just wanting a bit more business. But if the RT...