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  1. Wonko

    BPS attempts at psychologizing Long Covid

    Is it just me or would these people be much more useful standing next to a wall, on a plain, thousands of miles away from other people, and cellphone towers? After all, we can't have remote walls being unsupervised. They might get depressed, jealous, commit criminal acts, or simply wander off...
  2. Wonko

    The biological challenge of myalgic encephalomyelitis/chronic fatigue syndrome: a solvable problem (2016), Edwards, JC et al

    Is there any political will to train perceptive physicians tho? Given they seem to have spent decades trying to remove freedom of thought and options from medical systems. As most don't seem to be able to percept their way out a ripped wet paper bag unless they have instructions in flow chart...
  3. Wonko

    UK company Neuro ProActive

    It appears to simply be a web/app based connection thing. Exactly the same idea as uber, justeat or a host of other services. And in the same way take a cut without guaranteeing your food, or ride will be any good, meet your hopes/expectations. The fact it's 'medical' makes no odds, as they...
  4. Wonko

    Using PCs versus laptops when you're mostly in or on your bed

    My computer is in the cubby on the left - it's an intel i5 with 16gb of ram currently fitted. The system only has a 500gb SSD fitted as most of my storage is on my network (currently in a cubby on the other side of room). The computer is liquid cooled so is virtually silent apart from at power...
  5. Wonko

    Leg tensing up only at night

    Perfectly 'normal' for me. Only I can get it in both legs. Sign that I should really have gone to bed several eons before, usually a sign that general activity has been overdone.
  6. Wonko

    Best chopping tool/food prep gadget?

    I mainly use a sabatier mid sized knife, one of a set of 3 but the other 2 don't get used, bought, probably from argos, in the late 80s. I have other knives, supposedly higher quality, but they tend to stay in the knife block. General purpose knife, is what I generally use, for most purposes.
  7. Wonko

    Best chopping tool/food prep gadget?

    I use pre chopped frozen veg quite a bit, onions, mushrooms, squash, and quite a bit of my plated (i.e. not in stews or other cooked things) veg is also from frozen. Unless in a mix I do not use frozen carrots or cabbage, as they do things to 'em in freezing, or use varieties that are not to my...
  8. Wonko

    Best chopping tool/food prep gadget?

    I would have thought that an air fryer would struggle to produce baked potatoes, at least the type that I have/had (mines old and falling apart and has been replaced by a more conventional oil based fryer, as it's no longer made) (selected coz it rotates at an angle and agitates the contents...
  9. Wonko

    Lightning Process study in Norway - Given Ethics Approval February 2022

    Surely a treatment designed to be of benefit to society, rather than of benefit to patients......is a concern.
  10. Wonko

    Implementation statement in support of ME/CFS diagnosis and management, NICE, draft published for consultation

    I agree in terms of services re treatment. However the guideline, according to my memory, had a whole host of things about other services, of us getting parity with other conditions, things like getting appropriate social, acre, and financial support. Implying that the current discrimination...
  11. Wonko

    Lightning Process study in Norway - Given Ethics Approval February 2022

    That's certainly how I read it, and I don't read Norwegian.
  12. Wonko

    Low blood lactate

    And if it's impossible to avoid intense activity coz sometimes I need to get a drink.......or use the bathroom..... Of course opening the curtains is right up there, requiring leaning bent over on things to recover enough to sit/lie down.... My point us...intense activity is relative.
  13. Wonko

    Long Covid in the media and social media 2022

    I would infer from that that they think all the media psych people are either liars or idiots, as thos 'experts' won't shut up and are saying the exact opposite.
  14. Wonko

    Glossy tiles in bathroom

    I can't comment much, only an observation or two. Glossy tiles should be easier to clean, my understanding is that this is why they are used in kitchens and bathrooms. I have never seen matt tiles in such an environment so I cannot say if they would work. The tiles in my kitchen and bathroom...
  15. Wonko

    I'm curious about lab testing for viruses (not COVID) Is this common where you live? If so, when did it happen?

    The 'thing' that marks my onset is marked in my medical notes as; 22 april 1987 non arthropod borne viral disease of cns nos (xe0r8) viral encephalitis. It was 'bad'. I was not told (I didn't find this out until I got my notes a year or 2 ago - but I remembered the illness and have always...
  16. Wonko

    Implementation statement in support of ME/CFS diagnosis and management, NICE, draft published for consultation

    The what else is there argument is surely what has taken so long to at least officially overturn. It seems a tad iffy to say it's not okay that it harmful, for the opposition to use it, but to use it ourselves. If doctors for me are releasing duff info, or have an incorrect viewpoint, that is...
  17. Wonko

    Traumatic brain injury - similarities with and differences to ME/CFS, including PEM

    On the 'plus' side some people think hamsters look cute. Not andrex puppy, owned and looked after by someone else, cute, but still... My ME started off 'mostly' cognitive/neurological, there was a significant 'physical' impact but not enough to knock me below the societal norm - but...
  18. Wonko

    Australia: 2022 The CHROMIC Study - Understanding ME/CFS and discovering new treatments through repurposed pharmaceuticals - recruiting

    erm.....understanding your austin rover mini and looking for possible clutch repair options, in the children's bakery section of the library? How can they possibly come up with treatments, rather than just trying things at random, without at least a basic understanding of what they are...
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