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And that is a COMPLETELY different thing. Jen Brea and Per Fink very clearly have completely different aims.

Yeah but that doesn't mean that hEDS and chronic Lyme are not in themselves valid diagnoses. Just because some people over-diagnose them.

I agree.

But that's not what typically happens here on S4ME. Typically, people with greater knowledge of the condition try to enlighten us, and then other members come along and poo-poo what they have said.

Unlikely as it's a US website and so my dad won't see it as an authority as we're British and he thinks Britain is better than America (yes, he is that sort of person, sadly).

I have severe ME. I live with my parents. My mum is my principal carer. Mum and I want to get a stairlift. But Dad refuses because (a) it would spoil his aesthetic for the house, and (b) he thinks it would discourage me to try to use the stairs myself. I've only been up and down the stairs a...

Yep.

Hmm. "School refusal, or school avoidance, is a term used to describe the signs of anxiety a school-aged child has and his or her refusal to go to school." (I got this definition from the Internet.) Surely that is different to somebody having difficulty awakening due to a sleep disorder?!

But, they talk about a "late-night lifestyle"... it's actually been found that teenagers' body clocks are naturally more suited to a later schedule. https://www.bbc.co.uk/news/science-environment-34192371

I was going to say oh dear, but then I remembered that during my A-Levels*, there were a couple of times when I missed school due to being exhausted from staying up late working on my coursework or on my university applications. I don't think that "sleep education" would have prevented that...

OK. If drugs are mostly absorbed in the small intestine then how come some drugs can work very quickly? The first time I took Zopiclone, it started to affect me within 5-10 minutes!!! (Not placebo as I wasn't expecting it to feel how it felt) And when I take potassium for muscle problems, my...

Thank you wiggle

Can someone please explain this to me in simple terms (I'm in crash, poor cognition): Are all nutrients absorbed in the small intestine or does the stomach absorb some too? It seems that at least some medications are absorbed in the stomach? Considering how quickly they can act. Can I access a...

Found it. It's loooong. A load of questions about symptoms, which I think is mostly based on Fukuda criteria. "Describe what happens if you push yourself too hard" "Are there any other symptoms which worry you?" Questions about mental health history - have you ever experienced depression? If...

This just shows how ridiculous the BPS approach is. A trial of CBT for MS resulted in fatigued MS patients REPORTING less fatigue than healthy controls. Honestly :banghead::banghead:

I actually think I do have it somewhere! Will look later. I'm so glad I never got to the point of sending it in - I definitely wrote things on there, out of naivety, that would not have served me well to say at a BPS clinic.

Surely they should check beforehand what the people's levels of intestinal bacteria are like at the start. Otherwise the research is kind of meaningless. Some people with ME have SIBO and will be made worse with probiotics.

I just remembered this... Last year, I was given a referral to the local NHS CFS/ME clinic. They sent me a massive questionnaire to fill out. I never had an appointment with them in the end, because I left the area to move in with my parents. (I'm glad now I never saw them because I'm sure it...

Do the green ones cause any pressure on the jaw? I have this problem with my current ear defenders.

I know people who have or have had anorexia who would absolutely say that their thoughts and beliefs are highly involved in anorexia. - one who doesn't eat because she believes that she doesn't deserve to eat - two who became anorexic due to seeking something to control during a time of turmoil...