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  1. Saz94

    Studentship in process: A Mixed Method Exploration of the Association between Autism and Central Sensitivity Syndromes, Sarah Grant, KCL

    Simon Baron Cohen is disliked by the autistic community almost as much as Wessely etc are disliked by the ME community.
  2. Saz94

    Unhealthy attachments: myalgic encephalomyelitis/chronic fatigue syndrome and the commitment to endure - chapter in book on queer commitment

    It can be in some cases. "Scrupulosity" is the name for the religious form of OCD, and it can be absolutely devastating and debilitating for the sufferer. I know people who have suffered with this.
  3. Saz94

    Energy Conservation Management for People With Multiple Sclerosis–Related Fatigue: Who Benefits? (Blikman et al, 2019)

    What?!?! I thought Julia Newton was one of the good guys...
  4. Saz94

    Stretch marks

    On another ME forum, there is a thread about symptoms of connective tissue degradation in PWME. Someone has suggested that having lots of stretch marks on the skin would be a sign of this. Do you think that is correct?
  5. Saz94

    Campaigning persuades Royal College of Psychiatrists to change its position on antidepressant withdrawal

    This is good news in my opinion.
  6. Saz94

    Campaigning persuades Royal College of Psychiatrists to change its position on antidepressant withdrawal

    From the Council for Evidence-based Psychiatry. More details in the article. http://cepuk.org/2019/05/30/royal-college-psychiatrists-call-update-nice-antidepressant-guidelines-following-cep-campaign/
  7. Saz94

    Cognitive and behavioural responses to symptoms in adolescents with CFS: A case-control study nested within a cohort, 2019, Loades et al

    You have Schrodinger's thoughts
  8. Saz94

    Esther Crawley (2019) Physical activity patterns among children and adolescents with mild-to-moderate CFS / ME [baseline accelerometer MAGENTA data]

    Yeah looking for a boom bust pattern in group data would be completely pointless and meaningless
  9. Saz94

    Esther Crawley (2019) Physical activity patterns among children and adolescents with mild-to-moderate CFS / ME [baseline accelerometer MAGENTA data]

    My statistics may be a bit rusty as it's 2 years ago that I took a statistics course. But, I don't think that the use of regression analysis is even appropriate for this paper. You need to have solid grounds for treating one variable as the dependent variable in a regression, and the others as...
  10. Saz94

    'Recovery' statistics

    (This isn't really "news" but I didn't know where else to put this thread.) Firstly let me clarify that I am not talking about the bogus 'recovery' statistics that are propagated by the BPS lot. Rather, I am referring to hearsay that ive heard within the ME community (from people who are not...
  11. Saz94

    Invisibilia: For Some Teens With Debilitating Pain, The Treatment Is More Pain

    'Orwellian' is right. Torture is treatment Illness is recovery Scientific critique is harassment Orwell knew how language can affect thought. If we rename torture as "treatment" then it suddenly becomes acceptable! And if we rename scientific critique as "harassment" then it suddenly becomes...
  12. Saz94

    B12/Folic Acid and D3/K2 Supplementation

    https://s4me.info/threads/response-to-vitamin-b12-and-folic-acid-in-me-and-fibromyalgia-2015-regland-et-al.10019/
  13. Saz94

    B12/Folic Acid and D3/K2 Supplementation

    Sorry, I should clarify what I meant. I meant, I know of plenty of PWME (including myself and @Hip ) who report great effects from transdermal B12. I then shared that site as being one source of transdermal B12.
  14. Saz94

    B12/Folic Acid and D3/K2 Supplementation

    Many patients report that transdermal B12 delivery (i.e. through the skin) is very effective too. https://b12oils.com/products.htm
  15. Saz94

    Evolving evidence about diet and health, 2018, Mente et al, Lancet

    What do you think of the "healthy at every size" movement? https://www.google.com/amp/s/www.huffpost.com/entry/can-you-be-healthy-at-eve_b_7905358/amp
  16. Saz94

    The science of craniocervical instability and other spinal issues and their possible connection with ME/CFS - discussion thread

    What?!?! Why isn't this publicised?! That's really troubling. I would never have imagined that that could be dangerous.
  17. Saz94

    Is anyone else badly affected by pollen?

    Also some products here which may help. https://www.allergybestbuys.co.uk/categories/hayfever
  18. Saz94

    Is anyone else badly affected by pollen?

    I also bought an air purifier for my room, which is supposed to help.
  19. Saz94

    Is anyone else badly affected by pollen?

    I also find that anti inflammatories (medication or supplements) help - the histamine from an allergic reaction causes inflammation, which causes fatigue.
  20. Saz94

    Is anyone else badly affected by pollen?

    There are also some supplements which are thought to help reduce allergic reactions.
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