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  1. Ariel

    Trisha Greenhalgh on ME/CFS and Long Covid

    I thought I was paranoid. This is a little over the edge for me. It's hard to believe, yes! To be honest I find this development liberating. I'll throw away my conspiracy whiteboard now.
  2. Ariel

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Just seems like disingenuous framing, trying to co-opt language of social activism for political end of promoting BPS agenda. The actual "community" he's defending seems to be a small number of researchers who use recovery stories as part of their pseudoscientific narrative. What I found odd was...
  3. Ariel

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I would really hope that his colleagues see what he wrote re: listening only to the patients who recovered as unscientific and frankly absurd. "We need to listen to communities of people who have recovered from illness, says Paul Garner" - the subhead, which he presumably did not write. Did an...
  4. Ariel

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    Re: homeopathy I have seen it claimed that its use is justified because of the placebo effect. I have seen it framed as an ethical quandary - i.e. we know it's BS but the placebo effect is real. So shouldn't we do it? (Please note I am not agreeing with this line but have heard this from quite a...
  5. Ariel

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    It is striking how mild much of the criticism is - you really have to go through so many fairly measured replies to find anything that might be classed as particularly aggressive toward individuals - in the case of the one cited earlier, the offending tweet talked about "the c word". It did not...
  6. Ariel

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    To be fair, who would believe them?
  7. Ariel

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    While Garner's recent posts have seemed deliberately provocative and potentially partly designed to elicit a sharp response, I'm afraid I don't see the "vitriol" or "abuse", "harassment", etc in the replies. There are one or two that seem off base, but, really - genuine question - is this...
  8. Ariel

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Thanks @John Mac I appreciate it - and I really try to have hope about the research, although things can seem fairly grim! I don't want false hope, and I am not sure what is realistic. I really appreciate this forum. <3
  9. Ariel

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I have had ME/CFS for over a decade (20 years if you count the first time I was diagnosed as a teenager). 11 months ago I got sick with likely covid (no testing available). It was a very mild acute infection. I am still sick, however; a lot worse than I have ever been. I had improved a lot prior...
  10. Ariel

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I didn't see it this way - I thought she was using this to try to influence and control the agenda, taking the opportunity having cloaked herself in the issue of "the mental health of doctors" recently. (As an aside, I have read some of her views on this topic. They are quite non-standard, it...
  11. Ariel

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I have been wondering about this a lot as well, especially as I have long covid which has now turned into a major relapse of my ME/CFS. I can no longer go out anyway and live alone. I am just scared about getting worse with long covid and MECFS. If you can still get long covid after being...
  12. Ariel

    Trisha Greenhalgh on ME/CFS and Long Covid

    How long are they going to keep getting away with this? :(
  13. Ariel

    Trisha Greenhalgh on ME/CFS and Long Covid

    She has a huge audience and is making sweeping statements about what she probably perceives as "controversial" topics, so I find the notion that the quantity of comments led her to block people even more troubling. It just comes across to me that she does not want any other perspectives other...
  14. Ariel

    Trisha Greenhalgh on ME/CFS and Long Covid

    I have hardly seen any tweets that are particularly over-the-top; most of it just seems to be relating personal experience or disagreeing with something someone has posted - this is not abuse. I have seen TG as just wanting to silence people relating their experience of MECFS, interpreting it...
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