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Interesting the final bullet about influencing the research agenda. Presumably this ties in to the piece in draft guidelines about research priorities.

Just commented about this on NICE guidelines thread https://www.s4me.info/threads/nice-me-cfs-guideline-draft-published-for-consultation-10th-november-2020.17687/page-29#post-324690

There will be a role for the medical education group here. They already have that one hour module. The charities should get together/ forwardME possibly to write to all CCGs to highlight the new nice guidelines and the cpd module. I would be disappointed if they don’t have that in their plans...

the statement is still a sweeping generalisation

sweeping generalisation in my opinion about medics and engineers Why would Drs feel uncomfortable delivering MUS messages if they didn’t realise what BS it is.

David Strain - new name to me - this is his Exeter Uni bio https://medicine.exeter.ac.uk/people/profile/index.php?web_id=David_Strain

Yes. Although maybe you have other stuff youd prefer to spend that energy on instead of vacuuming?

Doesn’t sound right what would normal practice for a publishing commentary be?

Insufficiently equipped in communication yet basically their whole job is communicating insufficiently equipped in delivering embarrassing BS “models” convincingly to patients

Also if you’re able to get the vaccine at some point presumably can get help again and they can start off by doing deep clean session(s) to deal with accumulation.

I think g tech do an electric sweeper that would probably be much lighter than a vacuum cleaner

Oh yeah so holistic

Googled this as I dont know drug names. Common name is Ritalin which I had heard of.

Although I had a quick flick through her slides and I couldn’t see any mention of ME on them even on the PEM slide.

:banghead::banghead::banghead::banghead::banghead::banghead::banghead::banghead::banghead::banghead::banghead::banghead:

Blimey that’s just a cut down version of the previous response. Do they realise how shabby this makes them look.

Presumably this has been generated by the drug company and of course involvement in this will enable that team to present themselves as bio as well as psychosocial.......

What a surprise :banghead::banghead::banghead::banghead::banghead:

it took me 2 years post diagnosis of struggling to keep working part time. I was lucky to be advised in a private consultation that pushing to work would be detrimental to my health going forward. This was so helpful in helping me to realise I needed to put my health above continuing to work...

I have been to a couple of sessions yoga class organised through a local ME group. I could manage the stretches lying down but kneeling etc were too difficult. a good 1/3 of the hour was a lying down with lights dimmed guided meditation this was a lot more feasible than anything involving...