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This wet my appetite What did he just find!!!!!! Can't wait to hear more - hopefully at the Emerge Conference coming up very soon! I keep always thinking about this from September....

Thanks for the link to the paper @Andy Reading this I am drawn again to the plasma exchange experiments by Stanford on the nano-needle and Oxford/Karl Morten on the muscle cells. Those are pointing to something in the patients blood either being present or not being present that is causing the...

Interesting work @JaimeS! Love the hand drawn colour charts. Love to see data. * Are you considering continuing to track to see what happens when April comes and the weather changes? Will your doctor provide weekly or biweekly safety lab order to facilitate this? I know with insurance discounts...

Alcohol tolerance is an interesting subject - Searching "erythrocyte alcohol" brings up lots of interesting papers e.g. The Effect of Alcohols on Red Blood Cell Mechanical Properties and Membrane Fluidity Depends on Their Molecular Size So if our RBC's are already impaired it makes sense that...

I have not read anything about testing other illnesses at this stage. From what I've seen other people post, this test is unlikely to be disease specific, but can be useful to show something biologically is wrong. Les Simpson tested his own RBC's during infection and noticed changes Link to...

Both Karl Mortens team and a Newcastle team failed to replicate. These teams are considered experts on Mitochondria in the UK. Other places have previously tried to replicate but were not successful. The recent ME Association write up of Karl Mortens talk mentions this replication work...

This result on deformability from the first Davis et al RBC paper shows no overlap. The number of patient was low in this initial study. There was a very clear difference. I've not seen an ME study with such a marked differnce The second article that this thread is based on mentions a...

Apparently this is just a short article. The paragraph you see in the link is all there is. There will be no further details in this article.

Just so everyone is aware. California where @dave30th works is a state that has "employment at will" which means that an employee can leave their job, or an employer can fire someone with no notice and no reason. It is quite common for employees to be terminated and "asked" to leave the...

I noticed that there is only one month to submit the applications. Why have such a short open window to submit applications.......... unless this is posted with a particular project winner in mind..........

@JaimeS Here is a test from Quest and one from Mayo that includes AChR/ACh antibody testing if that helps. perhaps your PCP can order one of them for you if you haven't had them done. I'm no expert, just quoting what I've read other people have had - there may be better tests...

Some extra clarification from Stanford 1) The bicycle challenge is only on one day. The second day, patients come in for a blood draw. 2) The cardiologist is willing to write up a short report with the VO2 max for the patient who participates.

I took up your suggestion @Webdog and here is Tullia's explanation --------------------------------- The purpose of this study is to evaluate the immune system and microbiome of ME/CFS patients before and then during a post exertional malaise episode. PEM is one of the hallmark symptoms of...

You would have thought they would put a description of the bicycle exercise tolerance test (ETT) in the letter, or the link to the questionnaire. Most folks with ME are going to be concerned about the crash following the test and will want to know more details about what the test entails...

Very interesting. We have multiple groups looking at miRNA's in ME/CFS. Maybe something comes of it. High-throughput sequencing of plasma microRNA in chronic fatigue syndrome/myalgic encephalomyelitis (2014 Marshall-Gradisnik et al) https://www.ncbi.nlm.nih.gov/pubmed/25238588

Lubov Nathanson is shown in the PDF as belonging to NOVA. That would be Klimas's team.

Dr. Maureen Hanson is also looking at EV's as part of her NIH center grant. Link : http://news.cornell.edu/stories/2017/09/94m-nih-grant-funds-chronic-fatigue-syndrome-center

Back in April a PwME emailed Bath to express concerns about the study. This was the response.

That article was updated here https://www.omf.ngo/2016/09/09/updated-metabolic-features-of-chronic-fatigue-syndrome-q-a-with-robert-naviaux-md/

FYI - Gorden Broderick did evaluate blood from one such study Cytokine expression profiles of immune imbalance in post-mononucleosis chronic fatigue (2012)