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So, only 50% of suitable patients were willing to enter the trial, not surprising. In their future work: "Prior to proceeding to an effectiveness trial, there is a need to develop a robust method for distinguishing children with uncomplicated acute appendicitis from those with more advanced...

Mary Jane Willows, who was head of AYME left last year. Who was r=their last science person @Amw66 ?

Looks like the patch stimulates local secretion of sweat "The chemical sensors are two electrodes that are screen printed on the patch from conductive ink. The electrode that senses lactate, caffeine and alcohol is printed on the right side of the patch; it works by releasing a drug called...

Impressive range of medical specialities involved in this. Great that they have collected "ample biological specimens".

The usual patronising B******T

I am particularly pleased to see the research officer post. Hopefully this will help with the overall understanding of the biomedical science in the charity.

University of Liverpool isincluded as a collaberator. https://clinicaltrials.gov/ct2/show/NCT04801940?cond=COVID-19&lupd_s=03/08/2021&lupd_d=14 Has anyone come across this - FACIT? "The Functional Assessment of Chronic Illness Therapy -Fatigue Scale (FACIT-Fatigue) is a 13-item measure that...

From p4 of above "We conclude that the journey of Long Covid is not well understood and it is important to continue to listen to the lived experience as we move into the second year of this new disease"

Discusses inflammatory processes in brain as a potential cause of cognitive impairment.

Mary-Jane Willoes retired from AfME last year.

The James Lind Priority Setting Process aims to reach as wide a rang of PwME as possible, so "advertising" it through current clinics is important to reach thosewho may not yet be part of online or other support groups.

It also gives stakeholders time to prepare a response/press release or similar.

It's a very good podcast.

Participants were: "Children aged 8–18 years with cystic fibrosis (CF), an autoimmune disease, or postcancer treatment were recruited from the PROactive study, in which they were included from December 2016 through February 2020. The lower age limit was chosen because we aimed to investigate...

Then you could progress to raising just one eyebrow at a time. Takes a lot more concentration and practice. I never got beyond one eyebrow, but my husband can alternate.

I do undersatnd that AfME have done dreadful things for people with ME in the past. Having been to 3 AGMs and asked awkward questions about EC in particular, and chatted with several Trustees and staff, I do feel that their approach has changed. Some of their publications/website info is...

Further down the page is this comment on the AfME website: "There is much debate and discussion about CBT and GET – and the published evidence for them – about whether or not they work, and whether they might cause harm. In October 2019, we responded to NICE’s call for evidence as part of its...

Because the only NICE recommended approaches were GET and CBT, these were generally the only ones that would be funded by CCGs, therefore any clinicians who realised that GET or directive CBT didn't work still had to use those terms.

Well @dave30th certainly enjoyed ripping up a copy or two of PACE...

Is there a not missing from your first sentence?