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  1. rvallee

    Daily Telegraph: Why do we tell women they're mad, when they're really ill? Nov 18 2019

    But the underlying problem isn't of mental illness but of fobbing off sick people as not being a medical problem, with the assumption of some form of madness or hysteria. The end result remains the same: no medical care, no support, no accommodations, no disability and he is responsible for a...
  2. rvallee

    Selective effects of acute low-grade inflammation on human visual attention (2019) Balter et al.

    And of note that this was mild inflammation. I really hope they can pursue this and use a gradation scale of severity and how it relates to performance. At some point there should be a significant drop in performance, especially in sustaining it past a certain point. Not sure if it's even...
  3. rvallee

    The unifying diagnostic construct of bodily distress syndrome (BDS) was confirmed in the general population, 2019, Fink et al

    Imaginary category invented to encompass specific characteristics was indeed found to describe things it set out to describe. Using this logic the old construct of natural materials (earth, fire, water, air) was also shown to contain those things because there are such things out there that can...
  4. rvallee

    News from Scandinavia

    Very symbolic that the precedent for this judgment is from nearly the exact same mistake and for identical reasons. It's grotesque that this is almost entirely the fault of medical professionals and institutions. The despair that leads to situations like this is almost entirely the product of...
  5. rvallee

    Effects of mirthful laughter on pain tolerance: A randomized controlled investigation, 2019, Lapierre et al

    I laughed when I first searched the definition and came up with "full of mirth". Thanks, chief. But yeah it's pretty redundant and repetitive.
  6. rvallee

    Towards an institute for patient-led research - Trish Greenhalgh, BMJ blog November 12, 2019

    I'll give it another day and re-submit tomorrow. Still pending. Weird how one of the comments is timestamped as 3 days ago yet only appeared today.
  7. rvallee

    First evidence of immune response targeting brain cells in autism

    Out of my league but it looks like this is happening on the wrong side of the blood-brain barrier. We kinda have the same problem of not being able to peer into the central nervous system in live subjects and likely there are other immune abnormalities but they are not clear enough yet to form...
  8. rvallee

    Developing a biopsychosocial model and self-management treatment for fatigue in paediatric multiple sclerosis (CFS included a bit), 2019, Carroll

    I thought about this paper a bit more yesterday and in some ways it's devastating to the entire BPS ME model. It's roughly the same stuff as FITNET and something like a dozen other attempts at self-managed CBT for "fatigue". I'd put FINE in that category and possibly PRINCE, if I remember...
  9. rvallee

    Effects of mirthful laughter on pain tolerance: A randomized controlled investigation, 2019, Lapierre et al

    Good grief this is pathetic. How does that even pass peer review? Chronic pain studied via acute pain in healthy people? Why not actual patients? Did not change = favorably influenced? Down is up? Aspirations are a valid conclusion now? This is deeply unserious.
  10. rvallee

    Selective effects of acute low-grade inflammation on human visual attention (2019) Balter et al.

    If those numbers are reliable this is a borderline epidemic level crisis. Nearly 1/5 of the UK population reporting significant cognitive symptoms interfering with daily life but are typically brushed off by medicine. The worldwide numbers would place this at above 1B. That's staggering...
  11. rvallee

    Towards an institute for patient-led research - Trish Greenhalgh, BMJ blog November 12, 2019

    In better health I would bother but seeing as there are no other comments I think it's just that no one is assigned to it and it was kind of forgotten that this commenting system is even there. BMJ is huge and comments from the public are probably not on anyone's radar.
  12. rvallee

    First evidence of immune response targeting brain cells in autism

    Preliminary but interesting. Autism has been researched far more than ME and somehow this had been missed entirely. I would really like to see research done on post-mortem ME brains and spinal cords. This is the reason the researchers named this disease and there doesn't seem to have been any...
  13. rvallee

    Towards an institute for patient-led research - Trish Greenhalgh, BMJ blog November 12, 2019

    They are clearly not interested so I'll just let my comment on this thread stand as my contribution and leave them to their bubble and fantasies about patient-engagement-without-any-actual-patients. The one I left is a bit too long for twitter anyway. It's still pending so I guess that's one...
  14. rvallee

    Developing a biopsychosocial model and self-management treatment for fatigue in paediatric multiple sclerosis (CFS included a bit), 2019, Carroll

    And what do we say about correlation? That's it's not causation. Especially when it's so obviously a consequence of. Good grief these people are so desperate to show that the last 3 decades of this BS have not been the complete and total waste that it was. This is just embarrassing. What kind of...
  15. rvallee

    Functional Stroke Symptoms: A Narrative Review and Conceptual Model, 2019, Chalder et al

    Even a hammer is capable of doing more than just hammering nails. Hell, a hammer makes a better boomerang than this crap makes for credible science. Just updating the graphics doesn't change the fact that it's the exact same thing that failed every time being reused over and over again. Pretty...
  16. rvallee

    The IAPT Pathway for People with Long-term Physical Health Conditions and MUS. Full implementation guidance.

    Oh, but it's just for the low, low price of over £3B. Almost a bargain for no benefits at all. The beauty is that the system will now feed itself, if we're to believe the 2/3 of employees who are experiencing distress as a result of their work. They will need IAPT services themselves, creating...
  17. rvallee

    Towards an institute for patient-led research - Trish Greenhalgh, BMJ blog November 12, 2019

    Rings a bell but I think it was for an "official" response, not the Disqus comments below? I saw no other way to make a comment or response so maybe it's in a different part of the platform since this was an opinion piece, not a peer-reviewed paper.
  18. rvallee

    Intra brainstem connectivity is impaired in chronic fatigue syndrome, Barnden et al., 2019

    And these things can have huge consequences. Bad medical advice is not inoffensive just because of a belief system that declares it so against all evidence. In my last remission I was doing well enough that I had resumed full-time work and bought a condo with my then girlfriend. Soon after that...
  19. rvallee

    Cannabis-induced Acute Coronary Syndrome: A Coincidence or Not?, 2019, Landa et al

    Do we seriously need to add "well-known" and "include" to the list of words that have been stripped of all meaning? Kinda have to laugh about cannabis being more readily available. Yes, it totally was not readily available before very recently. Totally new thing. The amount of people making...
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