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  1. rvallee

    Who is Simon Wessely?

    The quoted tweets are the nicer ones. I guess the man who was the most hated doctor in the UK a few decades ago is still the most hated doctor in the UK. Having never budged from the reasons why he is rightfully hated, in fact having continued further into it. Funny how that works.
  2. rvallee

    Well-known, famous people with Covid-19 and Long Covid

    Dude is just not motivated to live healthily. Is the biopsychosocial explanation for his illness. What absurd crockery.
  3. rvallee

    UK: The Clinical Post COVID Society

    Not encouraging: "The Clinical Post COVID Society is a joint initiative between NHS England and British Society of Physical and Rehabilitation Medicine (BSPRM)"
  4. rvallee

    USA: The RECOVER Initiative - Long Covid research

    Infection-associated chronic conditions, such as Long COVID, have been notoriously difficult to solve. Despite years of research, the underlying biological mechanisms for conditions such as myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS), Post-Treatment Lyme Disease Syndrome and a...
  5. rvallee

    Earseeds, Acuseeds

    Regardless of how laughably bad this study is, and despite the claims of placebo being untested in conversion disorder, this is not the only one: Harnessing Placebo Effects for the Treatment of Functional Cognitive Disorder: A Feasibility Pilot Study 2024 Burke, Perez et al It's not as if the...
  6. rvallee

    From Software to Hardware: A Case Series of Functional Neurological Symptoms and Cerebrovascular Disease 2024 Coebergh, Edwards et al

    This is extremely weird and obsessive grasping at straws. It doesn't pretend to make sense, it's all so random and arbitrary about finding alternative causes, any alternative cause, no matter how senseless and unrealistic. The equivalent of finding a gas can, chemical analysis showing the...
  7. rvallee

    Earseeds, Acuseeds

    Pretty good, and right on that it's part of a broader problem. The author says they have more to pursue on it. I wonder at what point does this misleading advertising get countered by the growing use of "the treatment actually is the placebo" in biopsychosocial ideology, simply claiming that...
  8. rvallee

    Neuroimaging in Functional Neurological Disorder: State of the Field and Research Agenda, 2021, Perez, Carson, Edwards, Hallet, Stone et al

    This is some impressive Big brother fuckery right here, the kind that very rarely happens because it's too obvious*. This was a plain statement of fact, and it's removed simply because it makes them look bad. It's indefensible. Very similar to Cochrane's backtracking on acknowledging that the...
  9. rvallee

    Review Stigmatisation in medical encounters for persistent physical symptoms/functional disorders: scoping review and thematic synthesis, 2024, Treufeldt

    They seem completely oblivious that the very construct of psychosomatic illness is itself discrimination and the source of most of its stigma. Society doesn't do that just because, they do that because this is how medicine treats us, describes us and advises how to approach us. Not recognizing...
  10. rvallee

    Clinical effectiveness of an online group physical & mental health rehab programme for post-covid-19 condition REGAIN study, 2024, McGregor+

    I was really stunned seeing this. It's so brazen. They're basically arguing that less rigorous is better, as has been increasingly argued in recent years, that you can simply imagine it to be better and pretend that it could be. It makes zero sense as an argument, but that's just par for the...
  11. rvallee

    Clinical effectiveness of an online group physical & mental health rehab programme for post-covid-19 condition REGAIN study, 2024, McGregor+

    That this is being touted as impressive says a lot. It could not be a smaller effect, could not be more biased or misleading in having excluded the main problem in Long Covid and chosen the least likely cohort of hospitalized patients, while most with LC were not. And yet it's IMPRESSIVE in bold...
  12. rvallee

    Is reduced heart rate variability associated with functional somatic disorders? A cross-sectional population-based study; DanFunD 2024 Jørgensen, Fink

    That makes it close to 10 papers from the DanFund study, and there is no reason for that. The individual papers are all on small aspects from the same data. It should have been one paper, two at most. This looks close to an academic scam, where the researchers managed to pull off getting...
  13. rvallee

    USA: Mount Sinai PACS clinic and Dr David Putrino

    I'm not sure it helps much to misrepresent the psychosomatic view as a fringe thing. It's THE thing wherever the biology isn't understood. Fringe players don't dominate an entire profession's view. The establishment psychosomatic view is basically the Empire, but in a scenario where the rebel...
  14. rvallee

    Clinical effectiveness of an online group physical & mental health rehab programme for post-covid-19 condition REGAIN study, 2024, McGregor+

    And this being a physical exercise rehabilitation program, the main benefits should be physical. There aren't any. So what role does exercise even play here?! This is madness.
  15. rvallee

    Clinical effectiveness of an online group physical & mental health rehab programme for post-covid-19 condition REGAIN study, 2024, McGregor+

    Only 80% primary outcome data. Minimal significance they decided is 0.03, and they have 0.04. In an open label study with subjective outcomes where the aim is always to influence what people think. With 0.03 at 12 months, and 0.02 at 6. You could not have a smaller effect than this. Somehow...
  16. rvallee

    Clinical effectiveness of an online group physical & mental health rehab programme for post-covid-19 condition REGAIN study, 2024, McGregor+

    Hmmm. 4/6 = 100% OK, then. So as is tradition, it's a bust, but they report that "it may be of help to some" = effective. This is sick. There is something deeply wrong with this profession.
  17. rvallee

    High Prevalence of Long COVID in Common Variable Immunodeficiency: An Italian Multicentric Study, 2024, Villa et al.

    Even discounting the many decades of precedent, we are closing in on 4 years. Come on, this excuse is close to getting old enough to start kindergarten.
  18. rvallee

    News from the USA, United States of America

    Not sure if this is new but I don't remember seeing it. The NINDS is using a platform called IdeaScale to crowdsource community input for its ME/CFS priorities. https://ninds.ideascalegov.com/c/landing I saw it from Elizabeth Weaver, who is on the committee and, I think, a neurologist.
  19. rvallee

    Assessing the effect of selective serotonin reuptake inhibitors in the prevention of post-acute sequelae of COVID-19, 2024, Sidky et al.

    Hard to say if this study is rigorous enough to move things forward, but it would be really great if the immunological mechanisms of SSRIs were understood and medicine were able to move beyond the misleading labeling of antidepressants. IMO the acceptance of the bastardized version of depression...
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