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  1. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    On the Guidance Overview page: https://www.nice.org.uk/guidance/NG206 what is the significance of the Royal College of Physicians logo at the bottom of the page, above the "NICE accredited" logo? I've had a look at some other recently published guidelines and some just have the "NICE...
  2. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    That's Sharpe. I like Tweetle Does and Tweetle Doesn't. My son used to have two stuffed rabbits - one he named "Squeak" and the other one he called "Doesn't". White is back row, 5th from left. Sharpe might be back row, 2nd from left (it's an old photo). Not sure who that shifty looking guy...
  3. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Can't access this. It says I need to be logged in, although I am already logged in.
  4. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Has a copy of the NICE media release that went out yesterday been posted on the NG206 pages? I've not so far been able to find a copy?
  5. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Pretty sure the lovely PDW doesn't do Twitter, though Prof M Sharpe does. ETA: Sharpe does not have me Blocked. He's said nothing yet re publication of NG206.
  6. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    https://www.nice.org.uk/guidance/cg53 Chronic fatigue syndrome/myalgic encephalomyelitis (or encephalopathy): diagnosis and management Clinical guideline [CG53] Published: 22 August 2007 Guidance This guideline has been updated and replaced by NICE guideline NG206.
  7. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Once a guideline has been published, the Key Events Timeline is taken down. So I took the precaution of taking a screenshot of how the timeline stood on 27 October:
  8. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    The guideline was signed off for Quality assurance on 08 July 2021. NICE’s Guidance executive approved the guideline for embargoed release on 30 July 2021. The three committee members who stepped down (Michael Beadsworth; Gabrielle Murphy; Joanne Bond-Kendall) resigned on 26 July 2021...
  9. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Yes. I was told: "We have received an unexpectedly high number of similar overlapping requests. The complexity of processing them alongside reduced capacity within the small team that handles Freedom of Information requests at NICE, has meant we have needed to request advice from our external...
  10. Dx Revision Watch

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    Thank you mods and admins for all the work collating links and content for this new thread. Please move the following if it would be better placed elsewhere: At 5.58am this morning I received notification from WDTK of a response to my outstanding FOI. (My bolding)...
  11. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    ;) We've had a bottle of champagne sitting in the bottom of a wardrobe since 2010. We bought it to celebrate the final payment on our mortgage but a domestic crisis intervened and we didn't feel much like opening it. And there it still sits. Do you think an eleven year old bottle of not very...
  12. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    I question the claims in some quarters that ME, CFS patients are "thick file" "frequent attenders". Most of the UK ME folk I know keep as far as possible away from their primary care practitioners.
  13. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Apart from seeing their GPs for non ME related complaints, only, and not discussing their ME symptoms (which is what my lad does), I don't know, AknaMontes. ETA: Also, upon reaching the age when he could transition from paediatric secondary care for his ME to adult secondary care, he elected...
  14. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Fabricated or induced illness (FII): https://www.nhs.uk/mental-health/conditions/fabricated-or-induced-illness/signs/
  15. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Some patients in the Devon area have been reported as having had existing ME, CFS diagnoses changed to MH diagnoses by GPs who have been been exposed to IAPT presentations. And yes, an existing diagnosis of any disease does not prevent the assigning of an "overlay" diagnosis from one of the...
  16. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Facebook =AZUksA-E5eMaXLCHy2g0ezxid9fCnubxqnHw5qwIHeLvACum84pnH4-wTkpalbIoIKYkx_nZI3zmx4kXWxqfjDLj58KWG1_9GnhbgEFxIkrFLIpGN5E5TKfYI6FmWBegNW7bACqp-r1h9wbfXp1W65LR&__tn__=R]-R']ME Association If all goes to plan it will be available on [MEA on Facebook] and on the NICE website tomorrow -...
  17. Dx Revision Watch

    Publication of the NICE ME/CFS guideline after the pause (comment starting from the announcement of 20 October 2021)

    Just a reminder that although the CG53 was published in August 2007, not all Tools and resources materials had been prepared at that point and some Tools and resources, for example, an Implementation advice document and a Slide set weren't posted until November 2007. So not every projected...
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