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  1. Kalliope

    Can vaccines cure ME/CFS or Long Covid?

    There was an article yesterday in The Atlantic also titled: Long-Haulers Are Pushing the Limits of COVID-19 Vaccines. Haven't been able to read it yet, but the author, Katherine J. Wu, PhD, wrote the following summary of the article on twitter. (Tweet nr. 5 really worries me)
  2. Kalliope

    USA: News from #MEAction

    Sounds like great attendance!
  3. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The BMJ opinion: The stigma is real for people living with long Covid by Marija Pantelic and Nisreen Alwan Quotes: Testimonies from people living with long covid illustrate profound stigmatisation. Many of them have been disbelieved and their ill health was not recognised for months. Stigma...
  4. Kalliope

    News from Scandinavia

    Depressing editorial in the journal for the Norwegian Medical Association. LP-coach Live Landmark used to be a regular contributor to this journal, and I wonder if the editorial might be part of an ongoing campaign to secure the planned LP-study. The text is both in Norwegian and English...
  5. Kalliope

    'Reluctant pioneer': A qualitative study of doctors' experiences as patients with long COVID, 2021, Taylor, Chew-Graham et al

    Tweet from Amy Small sharing Anil van der Zee's tweet on this study: - It's not that I never believed in ME/CFS it's just that I didn't have the empathy for it that I do now. I'll hold my hands up & say that I get it now and l'm so sorry I didn't then. #MedTwitter read this. If you can't...
  6. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Just saw on twitter that the German politician Karl Lauterbach warns about opening up society and mentions ME/CFS as one of the reasons for being careful. According to wikipedia he's a professor of health economics and epidemiology and is a Member of the Bundestag. Here are the tweets google...
  7. Kalliope

    BPS attempts at psychologizing Long Covid

    WSJ Opinion: The Dubious Origins of Long Covid by Jeremy Devine (paywalled) - Echoes of chronic fatigue in the effort to blame to coronavirus for a host of questionable symptoms ... - The topic deserves serious study. Some patients, particularly older ones with co-morbidities, do experience...
  8. Kalliope

    Reduced endothelial function in ME/CFS - results from open-label cyclophosphamide intervention study Fluge & Mella 2021

    Full paper: https://www.frontiersin.org/articles/10.3389/fmed.2021.642710/full
  9. Kalliope

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Her reply: Hesitate to give a date now. What date is the new NICE guideline release? ETA: People have answered it's on 21. April, upon which she replied: Thanks! Updating some things is taking longer than I expected, but we're getting there: shouldn't take anything like that long.
  10. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Haven't read the article yet, but very convenient if there's something in the rumours about a GET trial for Long Covid. Noticed this reaction on twitter ETA: I've read it now. Even though it doesn't seem he's promoting GET as progressive exercise despite deterioration, it's pretty annoying...
  11. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The journal JOSPT has accepted Simon Décary and his team's paper. He shares the title of the publication in the following tweet. The title is: Humility and Acceptance: Working Within Our Limits with Long COVID and ME/CFS
  12. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I wonder if "exercise" was ment to be "infection" in the following sentence from the article? - Onset is often after exercise, and the first indications can be flu-like.
  13. Kalliope

    News from Scandinavia

    Biology professor Kristian Gundersen has been active again in the ME debate since the latest article with Wyller accusing ME patients to scare researchers from the field. Gundersen recently shared the Reuters article and received a reply from Sten Helmfrid. Then the Canadian Long Covid...
  14. Kalliope

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Inside Sources: Long COVID Has a Baffling Sister: ME/CFS by Llewellyn King quote: Long COVID is the condition wherein people continue to experience symptoms for longer than usual after initially contracting COVID-19. Those symptoms are similar to the ones of another long-haul disease, Myalgic...
  15. Kalliope

    News from Scandinavia

    Apparently in Norway academics do. He repeated that tonight in this tweet. (Translation by me): "Criticism and factual debate is for granted, but also the freedom our researchers have to themselves choose their issues, their methods and to freely publish their research. An increasing number of...
  16. Kalliope

    BPS attempts at psychologizing Long Covid

    Trial by Error by David Tuller Biopsychosocial Brigades Seek Traction with Long Covid Quote: - The biopsychosocial brigadiers have been losing the argument over ME/CFS, given the questionable body of research they have produced and continue to cite. The NICE draft demonstrated that the tide...
  17. Kalliope

    News from Scandinavia

    oh, what a pity to see. I don't think it's a reasonable demand for institutions to support their researchers no matter what. I'd say in contrary. Somewhere in the institutions there surely must be someone responsible for some kind of quality control? It didn't go well when Karolinska ignored...
  18. Kalliope

    BPS attempts at psychologizing Long Covid

    Here's an article from a Norwegian news site about research where researchers and the journalist seem to conflate Long Covid with PTSD, depression and anxiety. Etter korona-pandemien kan vi få en bølge av psykisk sykdom google translation After the corona pandemic, we may have a wave of mental...
  19. Kalliope

    News from Scandinavia

    Just adding that among the authors are Signe Flottorp from the Norwegian Institute of Public Health and Helene Helgeland - paediatric psychiatrist and leader of the national competence center for complex psychosomatic conditions in children and adolescence at Oslo University Hospital.
  20. Kalliope

    Articles by David F Marks

    New article: ME/CFS and CBT - a basic error Quote: In facing the mountain of invalidation that the Wessely School is having to endure, it has made the most basic error for any scientist: converting an inconclusive association into a conclusion of causation.
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