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The Long Covid Alliance is on Twitter

Solve M.E. Spearheads “Long COVID Alliance” to Accelerate Post-Infectious Research

Flottorp is also a close colleague of Lillebeth Larun (main author of the Cochrane review on ME and GET) at the National institute of public health in Norway. The name Per Olav Vandvik didn't ring any bell, but here's from the presentation of him at Oslo University's webpage:

I liked the article. But their webpage looked a bit weird for a news station and on their twitter bio it's flagged that they're "Russia state-affiliated media". Just thought I'd share that.

Trial by Error by David Tuller: National Institutes of Health Director Francis Collins on Plans for Long COVID Research

That was far better than the article from the Finnish Medical Journal.

Thank you for providing these links, @mango ! It doesn't sound like they're quite there yet. Here are some quotes from the google translated article from the Finnish Medical Journal:

I haven't yet read this thread, but am looking forward to. I've been pondering about something mentioned by a Long Covid patient in the recent Yahoo!life article A COVID-19 long-hauler details his year of 'hell'. He wrote he's "often hit with a sense of jamais vu, the big sister of deja vu. I...

NIH: NIH launches new initiative to study "Long Covid" NIH: Open funding opportunities

interesting to hear from Hungarian doctors and their take on Long Covid, so thank you for making a summary. I understand you're not very impressed, though..

This comment to the article from Frances Ryan has received 1 000 likes so far

Yahoo!life : A COVID-19 long-hauler details his year of 'hell' Senior Editor Ed Hornick got ill with Covid-19 over 10 months ago and shares his story. Mentions ME a couple of places. I've wondered why Yahoo!life has had some rather good, in depth articles on Long Covid.

So true! And it brings so many absurd situations where you don't even know where to start regarding explaining, so you just don't. Like when a housebound friend of mine was adviced to go out on the town and have some wine with her girlfriends. And me receiving advice on which shoes I ought to...

Exactly! The focus should be "What is important to YOU?" and "How can we make that happen"? I'd hate to have to follow a set activity programme by a therapist. I'll be able to do more in total when I am free to follow my own pace, by continuously adjusting activities according to the...

Here David Strain clarifies this as a misunderstanding and offers an apology:

This is how they describe the CFS/ME-team's interdisciplinary approach to "pacing" The patient's stories are sad to read. The shame and self blaming of not being able to live up to society's and one's own expectations of activity and productivity.

The Science Bit: Apart from the sampling ambiguity, weak measurement, survivor bias, missing data, and lack of control group, the study wasn't that bad

Trial by Error: Hughes-Tuller Comment of Wessely-Chalder CBT Study Rejected by Journal, Posted Here