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Fantastic effort by the ME patients interviewed! Very informative and recognisable. The GP who participated on the other hand talked about MUS and mind-body connection, and thus kind of involuntarily underlined the patient's stories of how hard it is to be believed and get proper help.

The doctor they hired is Dag G. Storla. He is a specialist in internal medicine and infectious diseases. He has a private clinic for CFS/ME and borrelia. I attended a lecture by him several years ago. It was at a conference promoting ME treatment at a Norwegian clinic by the Dead Sea. The...

The Norwegian ME Association has uploaded a brochure from Røysumtunet about their care facility for severe ME patients which is soon ready to accept patients. It's a PDF, so not possible to google translate, but you can see more pictures of the place. It looks beautiful...

Press release from NIH from 27th Jan: Research tools for ME/CFS-related data and biospecimens now available Two new research tools developed by RTI International(link is external), the Data Management and Coordinating Center for the NIH-funded ME/CFS Collaborative Research Centers (CRCs)...

Very good. Glad to see a politician speaking about this! Unfortunately I read the comment which I assume is written by a health care worker. Here's how it begins: Are these clinics really needed? I am open to new science and the fact that we do not know everything at the moment.However, I think...

The podcast is also available on YouTube. It was a great episode about listening to and cooperate with patients when researching, how important it is to make sure you're not harming trial participants, how much there is to build from the ME community, how it is crucial with more investment in...

I don't know. But I recommend listening to the podcast episode linked above. Once he'd learned of problematic aspects with fatigue measures, about the PACE trial, PEM and results from patient-led research into Long Covid, he stopped his own research project. I'm sorry, but am too foggy headed...

Had a look at the researcher on Twitter and yesterday he tweeted the following:

I am listening to this podcast episode now. Not sure I'll be able to make a summary, but the Canadian researcher is taking about challenges in how to perform research into rehabilitation of Long Covid patients when there are so many unknown factors. At about 20 minutes in (where I'm at now) he...

Publication history Accepted September 21, 2018 First published November 14, 2018. Online issue publication January 23, 2020 Does anyone know if it has received any reactions?

The West German public-service TV broadcaster ZDF have a six minute news segment on Covid-19 and ME with Michael Stingl, the neurologist who tweeted this.

Just adding what they say in connection to ME: There have been attempts in the media to link long COVID with chronic fatigue syndrome/myalgic encephalomyelitis (CFS/ME)19 or post-viral fatigue; however, this linkage has the potential to leave persistent symptoms uninvestigated and may be...

Still misses the point.

The debate about this study continues in the local newspaper to the city of the university, NTNU, who will conduct the study. This time a professor emeritus (NTNU) with no previous knowledge about ME shares his thoughts and support to the study. His understanding of Lightning Process is that is...

Nina E. Steinkopf has written an opinion piece in the Journal for the Norwegian Psychologist Association about NICE's guideline draft appealing to health authorities in Norway to keep up with new knowledge and development in the ME field. Bør legge utdaterte råd på hylla google translation...

And Avindra Nath in NIH. From the Medscape article Long Covid Cases Rise as Stigma of Chronic Fatigue Taunts (Jan. 2021): Unlike COVID-19 long haulers, however, many patients with chronic fatigue syndrome go at least a year with these symptoms before receiving a diagnosis, according to a...

Wyller is co-author. Here's from my notes from attending a lecture by him in 2019: He believes fatigue is fatigue. It makes no sense to try splitting the long lasting fatigues into a lot of sub groups based on diagnoses. He prefers simple diagnostic criteria and criticises the Canadian...

A perspective I had not thought of: