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Campaign from Semmelweis University (regarded as the No. 1 medical school in the country) for children with long covid, where they are trying to help their rehabilitation by taking them to all kinds of fun activities the kids request, to the zoo, adventure park, gokarting, horse-riding etc. One...

So, I know someone who has a post-viral disease and who was diagnosed with hEDS afterwards. She has been very afraid of also having CCI ever since and of having to undergo surgery and from time to time I have to dig up things to convince her otherwise. And today I've found this while I was...

Oh, I've just seen this: General Practitioners' Psychiatric and Psychosomatic Academy VII. (29th April-1st May) Description: The course is an optional in-service training course accredited by Semmelweis University under code SE-TK / 2022.I. / 00114, with a credit score of 48 points. It is an...

Eye movements may be key to chronic fatigue syndrome diagnosis “What we’re trying to do is generate a unique ME/CFS signature based on characteristic changes to eye movements, a behaviourial signature that is specific to the disorder that can be used to help diagnose it and monitor the effects...

In my own ME/CFS group there have been instances where people with chronic Lyme tried to convince group members that it is not ME/CFS they have but Lyme and should go to this and this doctor who will give them the correct diagnosis (because the standard test is wrong). Several covid long haulers...

This is the second round of studies who have got funding from the Hungarian National Academy of Sciences for post-covid research. You can find the winners of the first round here. (I only list the medical ones, because in this case "post-covid" means literally everything, even the entirely...

Disclaimer: I don't have sound or light sensitivity but I have synesthesia. (Senses are weirdly connected in the brain: when music plays I automatically "see" it in my mind - movement, shapes, colours. I also "see" numbers and letters in colour - in my head it is a fact that 1 is white, a b is...

Yes, I think I should have included "not a recommendation" in my post.

Do you know this charity? I just came across this article that talks about how beneficial they are to people with chronic pain and someone with ME/CFS was also included: I have found their website and here is the "What we deliver" section in PDF. Excerpts:

I have just read your weekly research roundup on the MEA website. Thanks for pointing out that these comparisons in these papers are very stretched.

My trigger was EBV and my GP automatically ordered the test for mono because that is what he suspected. (I guess based on the gigantic lymph glands I had: my neck was literally wider than my head, not kidding. I had no fever at all but I 100% had the "glandular" part.) It was a test for both...

Same here. I went to do my weekly shopping and I was almost the only one with a mask though, there were only 1-2 others. My sister and her husband have changed their views on covid now and say it is not going away and they cannot live like this and want to enjoy life, so are taking these things...

I haven't watched the videos but I remember coming across her website in the past and that I found some odd things, for example: Or:

Prolonged EBV? You mean acute infection for two years? Is there any source for that?

Possibilities for effective rehabilitation of post-COVID and long-term COVID patients with mild to moderate acute COVID-19, 2022, Bajzik et al ----- This is in Hungarian and not available online, it was published in a muscoskeletal journal. So I have absolutely no idea about the text but I'm...

Thanks for posting those @Andy, good timing. I'm currently in the middle of writing an article on HADS to show how easily it can misinterpret ME/CFS. The basic idea is to use an imaginary ME/CFS patient's answers to the statements and explain his reasoning behind these, with examples from his...

I had to educate myself quite early on on Patterson (and also the people pushing ivermectin) because they had a large social media presence and were quite popular among covid long haulers since almost the beginning, at least in the groups I joined here in Hungary. To the average long hauler they...

I was very definitely the case where EBV "hit me like a ton of bricks" and the whole thing was very compressed. I went from having way above average fitness level where I did 1000-calorie workouts regularly to often barely being able to get out of bed and rarely leaving my apartment in those...

Quote: During the 2003 epidemic of severe acute respiratory syndrome (SARS), a large number of survivors reported persistent symptoms that included muscle weakness and pain, fatigue, and dyspnea. In some patients, these symptoms remained for several years and resembled those of chronic fatigue...

Abstract Background There is a paucity of knowledge on the long-term outcome in patients diagnosed with COVID-19. We describe a cohort of patients with a constellation of symptoms occurring four weeks after diagnosis causing different degrees of reduced functional capacity. Although different...