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  1. Wyva

    Predictors for Developing Severe Myalgic Encephalomyelitis/Chronic Fatigue Syndrome following Infectious Mononucleosis, 2022, Jason et al

    Abstract Background: About 10% of individuals who contract infectious mononucleosis (IM) have symptoms 6 months later that meet criteria for myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS). Our study for the first time examined whether it is possible to predict who will develop...
  2. Wyva

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    It does include it but it is not one of the mandatory criteria. It is listed just a little bit below the criteria as one of the potential additional symptoms:
  3. Wyva

    Evaluating case diagnostic criteria for ME/CFS: toward an empirical case definition, 2022, Conroy, Jason et al

    Abstract Purpose Myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is an illness characterized by a variety of symptoms including post-exertional malaise, unrefreshing sleep, and cognitive impairment. A variety of case definitions (e.g., the Canadian Consensus Criteria (CCC), the...
  4. Wyva

    Stellate ganglion block reduces symptoms of Long COVID: A case series (2021) Liu et al

    Once I saw a website where the doc with his dubious therapy was said to have been nominated for the Nobel Prize for his work and it even gave a specific year when this happened. Fun fact: the names of the Nobel Prize nominees are sealed for 50 years, so no one knows who was really nominated...
  5. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    I'm putting this here because in the grand scheme of things it is not that interesting but locally it is a little bit. The main text is Hungarian but the abstract can be read in English: Monitoring the development of post-COVID–19 syndrome, 2022, Tamasi et al. Abstract: Link...
  6. Wyva

    A central role for amyloid fibrin microclots in long COVID/PASC: origins and therapeutic implications, Kell, Laubscher, Pretorius, 2022

    I think someone asked about the conflict of interest a couple of weeks ago in another thread and what it really meant in this case, because it wasn't so clear. It seems clearer from this one: Competing Interests E.P. is a named inventor on a patent application covering the use of fluorescence...
  7. Wyva

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Thanks for your worry! It's actually a bit better now because recently I've "appointed" a second moderator. She is the admin of the biggest covid long hauler group here, herself being a long hauler for two years now. She offered her help after she saw I was struggling with both writing articles...
  8. Wyva

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I have a relatively new member in my group who is convinced that ME/CFS = the nervous system creating toxins that go into the liver. And based on this she gives very confident advice to long haulers in the group, as if this was some obvious fact. I'm the evil idiot in the story questioning and...
  9. Wyva

    How mycobacterium tuberculosis infection could lead to the increasing risks of CFS and the potential immunological effects (...), 2022, Yang et al

    Full title: How mycobacterium tuberculosis infection could lead to the increasing risks of chronic fatigue syndrome and the potential immunological effects: a population-based retrospective cohort study Abstract Background Chronic fatigue syndrome (CFS) has been shown to be associated with...
  10. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    János Szlávik is an infectologist who is one of the people who talk the most about covid in the Hungarian media. Pretty much everyone knows who he is and every news site reports what he says. This is what he said today (Google translate): Regarding post-covid symptoms, János Szlávik said that...
  11. Wyva

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    The virus that caused the Spanish flu was influenza, namely H1N1. https://en.m.wikipedia.org/wiki/Influenza_A_virus_subtype_H1N1
  12. Wyva

    Covid-19 vaccination experiences

    4th vaccine experience First, my vaccine reaction history so far: I had 2 doses of AZ, then a Pfizer. I had very strong but normal vaccine reactions (brutal headache, feeling feverish and ill, chills, loss of appetite, nausea, the whole range really) for 1-2 days. This was a little bit milder...
  13. Wyva

    Covid-19 vaccination experiences

    I'm taking my 4th vaccine today. Is anyone still interested in these experiences (if it is better or worse than the previous ones) or has everyone already formed an opinion by now?
  14. Wyva

    The Netherlands - €28.5 million ME/CFS research program - ZonMW funding awards announced April 2023

    And from what I understand, researchers are asked to consult with patient representatives about their research and I think that probably helps the situation a lot even if someone hasn't got a lot of experience in this field yet. And for example in Hungary, there has never been any biomedical...
  15. Wyva

    NYT Article Long Covid Sufferers Are Struggling With Exercise

    It mentions PEM but mentions it as a common long covid symptom and only later starts talking about ME/CFS as something similar. It doesn't mention that it is originally an ME/CFS symptom. The article also talks about exercise intolerance in general (POTS, some people are too weak to exercise...
  16. Wyva

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    To be honest, I have this belief that at some point in the future someone will make an award-winning documentary on how nasty the BPS crew was towards this disease, how they twisted everything, how much politics was involved, how they made so many people's life miserable and so on. And honestly...
  17. Wyva

    News from the Visegrád Countries - Czech Republic, Poland, Slovakia and Hungary

    I took a look at the studies approved by the Medical Research Council last year in Hungary, so these are probably ongoing. These are the long covid related ones (these are also not the ones funded by the Academy, which I listed in this thread before). So the studies: Google translate: Title...
  18. Wyva

    16th World Congress on Controversies in Neurology CONy (London, UK, March 24-27, 2022.)

    I just accidentally came across this and thought it was worth checking. This is the website. And this is the preliminary programme in PDF. No mention of ME/CFS, no mention of POTS and even covid hasn't got a lot of attention. These are the only covid-related "controversies" I found: -...
  19. Wyva

    Studies on mild, moderate and severe ME/CFS

    Not yet I believe. I'm a member of the survey's Facebook group and they are also supposed to send the data for individual countries to the people/group representing those countries, which in the case of Hungary is me and I haven't seen or received anything yet.
  20. Wyva

    New NICE guideline on chronic fatigue syndrome: more ideology than science? 2022, Flottorp et al

    Btw, quite ironic how there is an article on the play titled Dr Semmelweis (currently playing in Bristol) in the same Lancet journal. It's paywalled, so I can't read it, but this is how it starts: Wikipedia article on Semmelweis for those who don't know: (But maybe BPS people would read this...
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