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  1. Wyva

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Something similar was found in Hungary too a few months ago, although using a shorter time frame. And they also mentioned the similarities with ME/CFS. I posted it here: Severe Fatigue and Memory Impairment Are Associated with Lower Serum Level of Anti-SARS-CoV-2 Antibodies in pw Post-COVID...
  2. Wyva

    Article : What’s the Difference Between Chronic Fatigue Syndrome and Fibromyalgia?

    I saw it too, but at least some parts of the article have been corrected. Not the central sensitization part, but now there is an explanation added that says CBT and GET are outdated. (Although I had to admit there are still some issues even with that explanation.)
  3. Wyva

    “I feel like my body is broken”: Exploring the experiences of people living with long COVID, 2022, Wurz et al

    Abstract Background: Long COVID, an illness affecting a subset of individuals after COVID-19, is distressing and poorly understood. Exploring the experiences of people with long COVID could help inform current conceptualizations of the illness, guide supportive care strategies, and validate...
  4. Wyva

    Well-known, famous people with Covid-19 and Long Covid

    Well, he has passed today. (After more than a month on the ventilator.) As I said, unfortunately not many people come back from the ventilators here.
  5. Wyva

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    To be honest, I don't think that VeryWell Health article is particularly well-written. It says it is fact-checked but then there are sentences like this in it: In 2020, the most pervading symptom documented by long-haulers was fatigue. In 2021, a study by the World Health Organization (WHO)...
  6. Wyva

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    The BMJ: Long covid in children and adolescents Risk appears low, but many questions remain Symptoms involving almost every organ system have been reported after SARS-CoV-2 infection.123 Estimates of the prevalence of long covid (also called post-covid-19 condition, post-acute sequelae of...
  7. Wyva

    Immunological dysfunction persists for 8 months following initial mild-moderate SARS-CoV-2 infection, 2021, Phetsouphanh et al

    Dr Charles Shepherd's comment from the MEA website: (Though I couldn't find where the authors noted the similarity with ME/CFS. Maybe it was in a different article I haven't come across.)
  8. Wyva

    Immunological dysfunction persists for 8 months following initial mild-moderate SARS-CoV-2 infection, 2021, Phetsouphanh et al

    I don't know if anyone here noticed but this part is actually missing from the now published version.
  9. Wyva

    Psychological Predictors of Self-reported COVID-19 Outcomes: Results From a Prospective Cohort Study, 2022, Ayling, Chalder et al

    Eventually they will say that symptomatic covid infection doesn't exist, it is just psychosomatic, caused by pandemic-related distress in people who are psychologically prone to it. That would be awesome, finally it would be obvious to the whole world how BPS ideology is more of a religion than...
  10. Wyva

    Longitudinal analysis reveals high prevalence of Epstein-Barr virus associated with multiple sclerosis, Bjornevik et al (2022)

    (Don't learn geography from that map though, they mixed up the Czech Republic with Hungary. Otherwise, it is of course interesting.)
  11. Wyva

    ...(PPG)-determined heart rate variability (HRV) & extracellular water (ECW) in the evaluation of chronic stress & inflammation, 2022, Chrousos et al

    Yes, I've had this thought for a while now that even when an unshakeably good biomarker is found, they will just say: "But they do that with their mind!" :yuck:
  12. Wyva

    UK: Physios for ME

  13. Wyva

    Online survey of the use of Transcutaneous Nerve Stimulation for ME/CFS, 2022, Physios for ME

    This post has been copied and following posts moved from this thread: Physios for ME
  14. Wyva

    Assessment of Functional Mobility After COVID-19 in Adults Aged 50 Years or Older in the Canadian Longitudinal Study on Aging, 2021, Beauchamp et al

    Key Points Question What is the association of a COVID-19 diagnosis and mobility and physical function among community-living middle-aged and older Canadians during the initial pandemic lockdown in 2020? Findings This cohort study of 24 114 participants found that community-living...
  15. Wyva

    Longitudinal analysis reveals high prevalence of Epstein-Barr virus associated with multiple sclerosis, Bjornevik et al (2022)

    I also believe that there is a cultural element for this very reason. I know that in Hungary most people never heard of EBV or mononucleosis unless they actually had it. I know I had no idea of their existence, had a hard time explaining even mono to quite a lot of people and also never met...
  16. Wyva

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I honestly hope they won't ruin any kid's life with some surgery. Or even worse, series of surgeries. :(
  17. Wyva

    Article : What’s the Difference Between Chronic Fatigue Syndrome and Fibromyalgia?

    I've read this article too and it also recommend treatments such as GET, yoga, hypnotherapy, improving sleep habits, mindfulness etc. I wasn't impressed at all either, so good job giving feedback, @boolybooly
  18. Wyva

    Orthostatic Symptoms and Reductions in Cerebral Blood Flow in Long-Haul COVID-19 Patients: Similarities with ME/CFS, 2021, Rowe et al

    I also actually have it, although for me it is air hunger, a feeling of not enough air coming into my lungs even though I breathe normally. Of course it can get worse with exertion but that is not the source for me and if I have it then I have it even if I just sit and do nothing (once I felt I...
  19. Wyva

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Oh no. Raelan Agle, Pamela Rose etc are all these ME/CFS coaches who have even recommended the Lightning Process or NLP. I actually have a lot of issues with them and their YouTube videos in my own ME/CFS group because people keep sharing their material. They think all those recovered patients...
  20. Wyva

    Physiotherapy management for COVID-19 in the acute hospital setting and beyond: an update to clinical practice recommendations, 2021, Thomas et al

    Additional info: this is not just an Australian thing but an update to the original guideline endorsed by the organization World Physiotherapy. Originally, PEM wasn't mentioned, so this is a new addition. The guideline has been translated to many different languages...
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