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  1. NelliePledge

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    Still 6 off 20k……………..
  2. NelliePledge

    Why do BPS proponents keep ignoring the evidence against their ideas?

    They see us like petulant primary school children who don’t know any better and just need to be brought in to line by adopting a ‘normal’ routine. They could save even more money ditch CBT and the clinics just make us watch old episodes of the tv nanny programme where she sorts out the toddler...
  3. NelliePledge

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    Still 44 off 20k Eta now 19….
  4. NelliePledge

    Bleeding heel fissure

    :thumbup::thumbup:
  5. NelliePledge

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    Fewer than 60 to hit 20,000 been ticking over last few days hopefully people will do fresh social media posts today and it will get over that milestone
  6. NelliePledge

    A map of metabolic phenotypes in patients with myalgic encephalomyelitis/chronic fatigue syndrome, 2021, Fluge, Mella et al

    Yep exactly as someone with mild end of moderate ME for me any physical activity has to have a practical purpose in support of daily living needs like washing my clothes or cooking, social activity like meeting friends occasionally usually involves some walking. Based on the activity I need to...
  7. NelliePledge

    Paul Garner on Long Covid and ME/CFS - BMJ articles and other media.

    I can’t think which review you have in mind :whistle:
  8. NelliePledge

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    Yes. For me at the milder end of moderate I don’t constantly experience sensory overload but it can appear post or during overexertion.
  9. NelliePledge

    United Kingdom: Bath paediatric CFS/Fatigue clinic - Esther Crawley; Phil Hammond

    But seriously does he think that people with post viral illness of all kinds in other jobs aren’t under pressure to get back to work. Especially those that don’t get sick pay.
  10. NelliePledge

    BPS attempts at psychologizing Long Covid

    Why am I shocked at the utter tripe this guy churns out :wtf:
  11. NelliePledge

    Bleeding heel fissure

    Urea cream is brilliant for cracked heels. Yes I know. I had crack that slightly bled earlier this year as my hard skin had been neglected. The cream works really well and it’s got suitable for diabetics on the label.
  12. NelliePledge

    A general thread on the PACE trial!

    @JemPD i suspect he is playing games around ‘false illness beliefs’ again because his lot have used ‘unhelpful’ illness beliefs so whenever people use the word false he feels able to deny it. Splitting hairs of course but it makes it seem to casual observers that they have never claimed...
  13. NelliePledge

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    19,007 I think it is going to take a while to go over 20k at this rate
  14. NelliePledge

    Guardian Article on NICE pause

    Premier League assist by @Caroline Struthers :thumbup:
  15. NelliePledge

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    Just had someone with ME who is FB friend sign this and share. There are still people out there to reach
  16. NelliePledge

    Petition: #MEAction: Publish the NICE ME/CFS Guideline Now

    Rate of signing has slowed down now 18,740. Would be great for it to get over 20k, 1250 more. I think it would be good if everyone who is able can send out another social media post. Especially on Facebook there’s no guarantee friends have seen this and it is definitely worth doing follow up...
  17. NelliePledge

    Fluctuating food sensitivities, theories?

    Other symptoms fluctuate in response to whatever is going wrong due to exertion eg i get various degrees of sore throat from a bit croaky right up to laryngitis where I wasn’t able to talk without pain for 3 weeks. So I guess that could just be the same for food intolerance.
  18. NelliePledge

    The role of lifetime stressors in adult fibromyalgia: systematic review and meta-analysis of case-control studies, Kaleycheva, Chalder et al, 2021

    If they believe it it must be true right, the researchers that is of course not the people who actually have the illness.
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