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As an influential group maybe this should be prompting them to get some evaluation done so it’s more than Group throwing stuff at the wall to see what sticks. Even if it is ‘what we’ve been doing for years’. That is a weak argument as we’ve been discussing elsewhere. Maybe I’m coming across...

If they are ok with including amitryptiline etc and gabapentin etc for sleep they haven’t even mentioned melatonin which at least doesn’t have sedative hangover. Is there any thorough evaluation anywhere of the benefits and downsides of these drugs specifically in ME/CFS?

I had a guy that was a handyman to do decorating for the pre sale refurb on my old house. I was able to do moving stuff myself and he then put big furniture in the middle covered with dust sheets and worked round. I found him on a list of trusted traders on the local age U.K. website. Now I’m...

Yes @Peter Trewhitt FB is so rubbish for finding posts that if someone sees a post and thinks I’ll have a look at that later they probably will struggle, even if they do remember. And if they’re someone who likes lots of stuff your post might not even pop up on their list. The only way you can...

Well it’s definitely going to be over 16k before 3pm as only 40 more needed will it reach 17k? I think it is possible if there’s another rush hour in the morning

Thanks @JohnTheJack i did wonder about the audience for unherd when I spotted one of the writers has the surname Furedi

Good wondering how many more by the end of the week, 17500, maybe even 20,000 is achievable

It suffers a lot with word choices but I’m repeating myself.

Socio-narratology - mmm well all I take from it is a classic example of specialised academic language and terminology seriously hampering communication.

i just don’t get why they do that. It’s extremely confusing for non-science people no wonder people get carried away into thinking these throwaway claims have some kind of basis.

Updated now gone over 13,000

Yes so far I’ve had three people confirm they have signed. Others may have done too without letting me know…….perhaps I am posting daily updates on Facebook because you can’t rely on your posts actually surfacing on people’s feeds due to that being influenced by FB not a simple case of...

I did get all the way through i used i dont want to answer this question a lot on the dubious questions. I’m fairly certain one of the sets was Chalder Cosmo quiz

Top job on Twitter @Trish :thumbup::thumbup::thumbup::thumbup:

Yep 3 or 4 years ago on social media group where I used to live I was told by someone who already had ME/CFS diagnosis (can’t remember what they used) that a consultant had told them they had FND and that is the umbrella that CFS, fibro etc come under.

About to tip over 12k only 70 more, looks like good support from international ME community :thumbup: Could go past the 2017 one if it keeps going like this.

Wow this is dim

2 people have let me know about Dr P H article. I’m just saying it’s positive he supports publication but he doesn’t seem to understand the scientific basis for treatments to be included in guidelines and that he seems to be waffling on about researching alternative therapies when we need...

Just a few off 11,000 now. 15,000 to match the 2017 petition doesn’t seem unrealistic Eta it’s tipped over 11k:thumbup:

Yes GET CBT absolutely doesn’t result in return to previous circumstances. Indeed the fact that return to work didn’t happen for participants on the PACE trial was used for my ill health retirement application in the report by my ME doctor to demonstrate that it was highly unlikely I would ever...