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  1. InitialConditions

    Chronic Fatigue Syndrome: a cognitive approach. Surawy et al. 1995.

    Oh yes, I've kept it, and have had the idea to do a blog post on it sometime. Just need to get round to doing it.
  2. InitialConditions

    Chronic Fatigue Syndrome: a cognitive approach. Surawy et al. 1995.

    I had the misfortune of being diagnosed by Tim Peto in 2018, who was then (and still may be) seeing ME/CFS patients in Oxford. I left with a recommendation to "do fun and frivolous things" and "do things badly on purpose", together with a sheet of paper with "Lightning Process", "Trudie Chalder"...
  3. InitialConditions

    UK: Removal of maximum council tax award (April 2020) for those on benefits

    The ceiling is for the council tax award (also known as council tax reduction), not the actual council tax bill. They took around £400 off last year due to my income levels and claiming UC. This year they have taken off about £700.
  4. InitialConditions

    UK: Removal of maximum council tax award (April 2020) for those on benefits

    UK I've just checked my council tax bill and it is significantly lower than last year's. This is because the Tory government brought in a ceiling on the value of any council tax award (dependent on benefits etc.). If I recall correctly, this ceiling has been removed for the next financial...
  5. InitialConditions

    Management of functional neurological disorder, 2020, Edwards et al

    "There is increasing evidence for the role of neurologists in both the assessment and management of FND" SHOCKER.
  6. InitialConditions

    Coronavirus - worldwide spread and control

    It sounds like the illness was particularly bad for her. Or maybe because she is older. I hope Claire now realises what being absolutely exhausted on top of feeling like death feels like.
  7. InitialConditions

    UK: Sarah Myhill - 2015 Video: Chronic Disease - What's Really Going On

    This iodine salt pipe thing is the most bizzare crap I've ever seen - perhaps more bizzare than crapping yourself from taking 100 grams of vitamin C. I thought it must be something popular in the alternative medicine world, but alas, it seems it's just a Myhill thing. She states in the video...
  8. InitialConditions

    Question: Coronavirus & home sewn masks?

    The consensus seems to be that this is likely the only benefit. For non-infected persons, it seems the small benefit of the mask is largely due to reduction in hand-to-mouth/face contact.
  9. InitialConditions

    Dr Karl Morten - UK researcher based at Oxford University

    Yes, the pot is self-limiting. It must be divided up - with winners and losers. One issue with our illness compared with M.S is the rate of patients who are in work and earning a salary that can allow them to donate.
  10. InitialConditions

    Dr Karl Morten - UK researcher based at Oxford University

    This is precisely the thing I am getting at with my comments. I am pretty well-versed in M.E. science and potential leads...but I've never heard of L-form bacteria. It would be good if we could put some questions to Karl.
  11. InitialConditions

    Dr Karl Morten - UK researcher based at Oxford University

    I'm just angry that we are forced to crowdsource basic research. This is not directed towards anyone who has started these campaigns. Where is the UK charity involvement in this campaign?
  12. InitialConditions

    Dr Karl Morten - UK researcher based at Oxford University

    We are being asked to donate left right and centre - and that's before taking into account traditional donations to the charities or support groups. Our community has limited resources. I just don't feel this is a sustainable way of doing business. We have a duty to explore and understand why...
  13. InitialConditions

    Dr Karl Morten - UK researcher based at Oxford University

    With all due respect to all teams that feel the need to go down this route, this crowdfunding is really getting out of hand.
  14. InitialConditions

    United Kingdom: Leeds and York Partnership - CFS centre

    He said he's doing a full-time PhD which would be consistent with being well or perhaps having the most mildest form of ME/CFS. We don't know the story - it's possible he's mentioned some mental health issues when first enrolling in the service. I know from the personal experience of some...
  15. InitialConditions

    United Kingdom: Leeds and York Partnership - CFS centre

    I must get myself some of those highlighter pens, maybe that's where I'm going wrong.
  16. InitialConditions

    Coronavirus - worldwide spread and control

    the more you buy the better the chance you won't die!!!
  17. InitialConditions

    Coronavirus - worldwide spread and control

    Someone has complained to the MHRA about Myhill's (quite frankly bizzare) coronavirus page. See the attached screenshot. https://drmyhill.co.uk/wiki/Coronavirus_–_it_is_not_a_death_sentence!_What_do_you_need_to_do_for_viral_survival
  18. InitialConditions

    United Kingdom: reMEmber news

    Titles are very often the work of editors and not reporters / writers. I'd be surprised if they had any say in it.
  19. InitialConditions

    A Future Without ME/CFS: True causes and effective treatment strategies. Seminar with Dr Dietrich Klinghardt plus guest speakers. 15th Feb 2020

    Exactly this. Everything is presented as though it is fact. There are many hypotheses in the literature but they are presented as models and/or frameworks and backed up by some sort of evidence. Very different.
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