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Looking this one up as someone on social media has posted that they have got an (NHS) appointment for this test for CFS. Don't have any more details but is this something some places are doing now and if so who and for how long - or is it isolated cases where someone asked for it due to specific...

On that latter one given how viley we are all treated - particularly in the judgement and evaluation arena (lots of twisting of things) - I can see how a 'normal reaction' to an 'abnormal situation' would definitely be warped into someone claiming this. Besides given how many just want to do the...

It also makes sense if we get people wanting to cross-reference their own research to bits of findings from it if they 'had the choice' to use the same tool with the same format (and wording) for filtering/grouping or whatever it might offer ie research is 'on the same page/scale/cohort' going...

Shocking numbers isn't it. And nearly all of the presentations I see to CCGs say it is cost neutral and have all sorts of savings calcs about 'care and benefits' reductions. And saying it will increase the workforce. To quote what I found in the PACE minutes about the DWP only funding research...

Yes I often have to point out to people that 'BPS' (biopsycho) is actually anti-psychology. So we have all sorts of double-think where they accuse those who question them of anti-mental health. Goodness knows why those who do CBT that is properly developed around a condition that was mapped...

It's weird and circular I agree. And a lot of mental illness is an injury caused by someone else so the 'responsibility' bit doesn't add up either. If someone's hand is burning then you ask their perpetrator to take the iron off it. That's real scientific psychology as much as any other science...

Yep it means nothing - especially if it isn't true AKA for a scientist I don't see her presenting research on that, even if it means nothing anyway. Other than..... it being a tactic to close down debate AKA 'it is now commonly accepted bla bla bla..' = 'I don't want to hear about anything to...

Using proper science to do so? Something's gotta give there

That about 'nutshells' that one (in a nutshell. : in a very brief statement). Bravo. :emoji_medal:

An addendum of concern having read this through. This seems to be a review of the literature (well isn't new research, I'm not sure it includes all the literature/whether it is selective of papers or what that would be based on), and isolated only to circadian rhythms. There are sections that...

I struggle most with texts, whatsapp better, messenger even better. if a simple yes/no Q all are fine. the lack of ease in editing and therefore the cognitive load in being succinct given word-finding (and with texts on my phone the autocorrect and scrolling to copy paste) are all factors. I...

I relate. It seems so fixable (and there should have been treatments that could help by now - if only obvious already licensed things that vary by type), and at least easily accommodatable to ensure people don't become more disabled. Like letting people park near a building rather than fighting...

This is a relief to see. I remember once many years ago and mentioning my various test results to someone in biochem they said that Lightman in Bristol was the person to see. I doubt it would have gone well give all the nonsense surrounding things, but this makes me think of it again and wonder...

Agreed it took me decades (due to my non-supported situation) to work out it is a PEM and over-baseline (ie before PEM gets a chance to hit and you might be made to be over baseline continually, or just trigger adrenaline by going over it enough you've 'pushed through) thing. Yet I cannot tell...

That's the one 'crash'. And the one that really gets on my nerves (distributed by Crawley I think) is 'flare' - partly because she seems to encourage using it for 'relapse' (which is permanently/long term lowered ability) and melds it with 'crash' (which is 'out'), which is the really most...

I understand - I think/suspect that the consideration of this term has been triggered by various BPS proponents beginning to use/advertise things like post-exertion-fatigue and post-exercise-fatigue. Obvious connotations to the idea we are all just a bit 'oversensitive' to 'normal responses'...

I think the 'overall number' is an issue to ascertain in the ME/CFS pot (I can think of all sorts of reasons, including how you define that pot), whereas the number for severe and very severe theoretically should be something a health system knows given just how ill people are with it to plan...

That is good to know if that is how it is being interpreted. I'm getting up things along the lines of a general feeling of unwellness. I probably didn't clarify well enough that these were separate examples. I'd get raring sore muscles deep right through in the muscles just from driving a...

Well said. Ambiguity is the enemy - and that applies for many subjects that nuance is absolutely vital to get everyone on the same page - whether for a strategy or talking about the same thing or anything else. Whilst we are on it, just to show how habitual these things become I don't think...

Agreed. I think switching to better understand PEM and consider it a 'core' is important. In the 'chicken or egg' claim of fatigue vs PEM over all these years, whether 'fatigue' (of its 100 different kinds) came first or because of or both, the PEM is the consistent across severities. But how is...