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    BPS attempts at psychologizing Long Covid

    It's weird that the GPs like this have got that far in reading the papers they push out on placebo effect (a BPS favourite), and on reading the rubbish wastepapers on BPS et associates' 'treatments' based on unblinded controls and subjective measures (just like the placebos in the...
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    United Kingdom: Sussex & Kent ME/CFS Society News

    it would be sooo interesting if participants were given their unique ID number in the raw data, so one could see this contemporaneous evidence alongside how it was 'dealt with' by investigators. Patterns such as people being categorised as dropped-out, recovered/not declining rather than...
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    UK: Social prescribing on the NHS (and possible implications for ME/CFS services)

    I see your concern. That the things those who have ME generally all need is medical checks and functional support - ie the last thing they are is thick and needing the concept of 'pacing' described in detail, they do however often live in a world that actively makes that impossible unless...
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    Esther Crawley

    Surely they cannot justify not having a register to check for how many needed emergency or non-emergency surgery for a set time longer than that? I say this assuming that ethics mean they cannot recruit those who would obviously need an appendectomy relatively urgently in that 6mnth space of...
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    Evidence based care for people with chronic fatigue syndrome and myalgic encephalomyelitis, 2021, Sharpe, Chalder & White

    I guess patients should take strength in the fact that they are not alone in getting blamed when their treatments don't work It addresses the 'harms, what harms?' issue by suggesting (which I'm pretty sure I've seen them do before recently) they had 'safety measures' (did they?) and 'it must...
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    Unexplained vs explained symptoms: The difference is not in patients' language use. A quantitative analysis of linguistic markers, 2021, Stortenbeker

    That is how I read it. Basically seems to say that the only difference in communication between MUS patients and other patients is the way other people treat/speak to them. And that stigmatisation is the cause.
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    Esther Crawley

    Hello Skycloud, I'm new so hope I do alright with this first comment. Do you really think that her sleep therapy would work, particularly on teenagers? I'm old enough to remember that every few years for decades there have been articles/research studies hitting the news talking about moving...
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