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The picture I've picked up on from this - being ME-specific here is that it is the most ill that get told 'nothing for you' and the least that can access the services. And we all know that most once they realise what is on offer realise it will overall (inc travel) make them more ill as there is...

If it is the same one that was on the TV programme (trust me I'm a docor I think) then the phrase 'conditioned response' is something I mentally debate about whether it has either been stretched as a term or there is something else more strictly accurate. Given the drink was in fact medicine...

135day rule starts to sound even more important for charlatan-filtering. Could we come up with some catchy storytelling-style analogies for this one? I'm thinking there is material in the sector of hairdressers to cover a few of these effects

Indeed, just scary that the conclusion and abstract didn't underline absolutely with the side of common sense and history in their discussion of that 'non-finding'.

Thanks for confirming re: thread. Yes, that is certainly the impression coming through. Busy-work. I'd somehow missed the "was to allow the clinics to transition" confirmation I think but makes sense. I can't help read most of the many job descriptions, note the CBT or other specialism (CBT is...

This is a big issue I think in a broader sense. I'd like to see a thread on it in wherever the relevant place would be - noting this one is for services that individually can be addressed - discussing whether what we currently have is a set up where lots of the services saying they are for ME...

"nadir around August" I mean I can think of many illness-related reasons why it would be a certain point into peak or long terms that people would end up falling over, but I can't help but ask whether the researchers have accommodated for PHYSICIANS summer holidays. I know my dentists for...

https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2770651 I think this is where people are trying to head in some areas. "Conclusions and Relevance The findings of this study suggest that improvements in clinical outcomes among participants randomized to placebo were not limited to...

Technically it is delay if you can complete more than you should have. I think it is easy to forget that normal people get signals from their body well before they are into a 'zone' that would lay them up for days+. Someone can't make themselves run a marathon fast enough to do enough damage, or...

Agree on the placebo being a bit of an emperors new clothes we've allowed them all to get away with for too long. No proof it is 'all in the mind of the patient', normally it is a trial effect - manipulation that requires and involves many people's behaviour, choices, set-ups and promises of...

It is incredibly naughty because those clinicians cannot speak for themselves, for all we know they could have thought it had been too soft on BPS. And I'm very sure that if the biomed side had inferred in the way these guys have then BPS would have noted that fact. Putting words in the mouths...

Keep the same people in, they do all this and then at best claim a 'compromise' AGAIN so at best you end up with BACME doing what they want. A load of money wasted on physios delivering motivating CBT about very little with no medical care - so basically ending up filling the clinic places they...

Wow. I mean we shouldn't be shocked at someone doing the right thing properly and taking it seriously, but it has been so bad for so long by so many

I've concluded from the number of these new jobs that seem to undermine the guideline that those in the current services genuinely believe that they are for them and all about them. And that nothing can move forward until they are cleared out. I feel so much less sympathy for any 'poor me'...

"One patient booklet, for example, informed patients: “You will experience a snowballing effect as increasing fitness leads to increasing confidence in your ability. You will have conquered CFS by your own effort and you will be back in control of your body again.”" And I think the other point...

I just have that horrible feeling it is 'manufactured' ie they get someone with severe ME and force them on a sleep hygeine and exercise regimen and then refuse to listen when they beg to sit down, eventually you get what would be called exhaustion of the kind no normal person would experience...

The original article sounds about right to my personal experience. It is essential things like this are written, heard and the what it feels like to have this body and what not enough rest and too much exertion does and feels like as a life is understood. When I see the video of Clare Gerada...

Is anyone medico-legal (or close enough they know what it looks like) on here? They definitely don't write in business-speak, so I'm curious to know whether this is the etiquette for medico-legal-speak and am open to knowing the answer either way

I find it insightful that she has used the noun 'patients' in response to an email to 'you'. All sorts of possibilities feeding into that

Is anyone actually going to do more than raise an eyebrow and forget about it with that one either? EDIT: OK now I know it is about Roe v Wade then that actually is one where people hopefully will do more Telling people to learn this term is not going to help them to communicate what has really...