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There are probably some things in medicine that at this time are not that amenable to measurement using objective measures e.g. a lot of types of pain. It would thus be hard to exclude subjective measures completely as not all interventions can be blinded. As I have mentioned before, when...

I haven’t been reading much in-depth in recent years but I previously felt that fatigue should be broken down into different elements more. I suppose the (generally very flawed) Chalder fatigue scale and as I recall the MFI questionnaire does this to an extent but my recollection is when they...

Not sure how new this list is?

https://ntnuopen.ntnu.no/ntnu-xmlui/handle/11250/3080846 View/Open no.ntnu:inspera:146716340:26766723.pdf (6.760Mb) URI https://hdl.handle.net/11250/3080846 Date 2023 Metadata Show full item record Collections Institutt for sirkulasjon og bildediagnostikk [1697] The association between pain...

For what it is worth, the full text is now available: https://www.frontiersin.org/articles/10.3389/fnins.2023.1202930/full

This time I have read the blog post before posting here. It’s mainly a re blogging of an earlier (2017) blog that is no longer available at the original site and includes the comments underneath, many of which were from members of the ME community...

Another one is Jason, L.A.; Jordan, K.; Miike, T.; Bell, D.S.; Lapp, C.; Torres-Harding, S.; Rowe, K.; Gurwitt, A.; de Meirleir, K.; van Hoof, E.L.S. A Pediatric Case Definition for Myalgic Encephalomyelitis and Chronic Fatigue Syndrome. J. Chronic Fatigue Syndr. 2006, 13, 1–44.

"The Cost of ME/CFS: An OT’s Lived Experience" https://batemanhornecenter.org/the-cost-of-me-cfs-an-occupational-therapists-lived-experience/ I found it a bit interesting that this person who was an OT themselves still had difficulty adapting. Edited to add: Extract: "It was counterintuitive...

A thread with a link to the text is here: https://www.s4me.info/threads/american-family-physician-patient-information-myalgic-encephalomyelitis-chronic-fatigue-syndrome-how-to-help-yourself-2023.34155/#post-483586 One can see the 1-page PDF here...

Despite having Facebook, that link doesn't seem to work for me. But it is presumably this https://core.ac.uk/download/pdf/96679012.pdf

I get the impression in my country if you have ME/CFS and go to a neurologist particularly if you don't already have a diagnosis, there is a good chance you will be diagnosed these days with functional neurological disorder. So they would have some contact with patients.

Very good. And I’ve heard people in England say they felt they needed to do CBT or GET to keep their GP happy/keep in with their GP. Edited: And of course children/young people and their families can feel coerced so they don’t face child protection procedures and the like. And occasionally that...

@cassava7 did great work giving a breakdown of the authors of the 8 errors paper. This is an update to @cassava7 ’s post with Chalder added (she was omitted in error): === Breakdown of authors by specialty and area of research. Only academic affiliations are given, except for clinicians who do...

Update to @cassava7 ’s post with Chalder added: Breakdown of authors by specialty and area of research. Only academic affiliations are given, except for clinicians who do not have one. 11 countries are represented. Below is the tally by country. 1. UK: 29 2. USA: 7 3. AU: 3 4. CA, DE*, NL...

That’s great. I thought someone said there was 48 or 49 originally? Chalder was an original author (not surprising given she is the corresponding author):

Can anyone update this with a breakdown of the authors in the final published paper. Also which someone else could do if they didn’t want to do the first job, a list of the people who are no longer listed and another list of new authors would be good.

Best of luck to anyone who tries. I think it could be difficult to get through. But I suppose people do have the opportunity to post something like that elsewhere on the internet if they spend time on it and it doesn’t get through.

It might have been something like this which was in their press statement. “It is disappointing but not surprising to find that these doctors and researchers, many of whom have devoted a large part of their professional life to trying to persuade their colleagues that ME/CFS is caused by...