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https://m.youtube.com/watch?v=Gv73uGSBLAQ IACFS/ME October 2022 Virtual Journal Club - Dr. Arnaud Germain 121Views 19 Oct2022 Dr. Arnaud Germain from Cornell University (Ithaca, NY, USA) and his team compared metabolites in people affected by ME/CFS with healthy people during and after 2-day...

https://m.youtube.com/watch?v=Gv73uGSBLAQ IACFS/ME October 2022 Virtual Journal Club - Dr. Arnaud Germain 121Views 19 Oct2022 Dr. Arnaud Germain from Cornell University (Ithaca, NY, USA) and his team compared metabolites in people affected by ME/CFS with healthy people during and after 2-day...

OK. I see US patients posting quite a bit about opioids on social media and I could imagine some people might be inclined to agree with them based on the information given without realising prescribing patterns are very different in the US to many other countries.

An example I vaguely recall: after a dental procedure, someone in the UK or similar country would get prescribed one or two opioid tablets. While someone in the US might be prescribed one or two weeks of tablets, by which time they could have a level of addiction.

I don’t have much in-depth knowledge but my understanding is opioids are much more widely used in the US health system than in the UK or many other western countries. I think I saw a figure of the usage in the UK being something like 2% of the US (adjusted to population sizes)? And the wide use...

Reflecting on attitudes to being excluded from this research study: Some people are very adamant that strict criteria such as ME-ICC should be used for both clinical and research purposes. I think it would be interesting to observe reactions when it was found that such criteria would exclude...

With regard to swine flu, we have this Norwegian study: https://pubmed.ncbi.nlm.nih.gov/26475444/

https://bmcpublichealth.biomedcentral.com/articles/10.1186/s12889-023-16152-2 Research Open Access Published: 21 June 2023 Prevalence and correlation of multiple chemical sensitivity and electromagnetic hypersensitivity with age, sex, and depression in the Japanese population: a retrospective...

Free fulltext: https://www.sciencedirect.com/science/article/pii/S073839912300246X What we know about fatigue self-management programs for people living with chronic conditions: A scoping review Neda Alizadeh a , Tanya Packer b,c,* , Yu-Ting Chen d , Yaser Alnasery a,e a School of...

WAMES AGM 2023: hope for the future https://wames.org.uk/cms-english/wames-agm-2023-signs-of-hope-for-the-future/

Yes, not so good this is aimed at carers specifically. But on a general level, I do think society has a problem with consumerism and all the advertising of material possessions as being seen as the way to happiness. And the US society has a bigger focus on consumerism than most societies. Also...

From: Dr. Marc-Alexander Fluks Subject: WebTV: Post-Covid - Research and Treatments (in Dutch) Programme: Focus (Science Programme) Station: NPO-2 TV Date: Part 1: June 24, 2023 Part 2: July 1, 2023 Time: 18:10-18:35 UTC WebTV: https://www.npostart.nl/live/npo-2...

https://psyarxiv.com/7c4yf/ Putting the Vicious Cycle to the Test: Evidence for the Cognitive Behavioral Model of Persistent Somatic Symptoms from an Online Study Alexander H. J. Sahm1* , M.Sc., https://orcid.org/0000-0002-1401-4329 Michael Witthöft2 , PhD...

https://www.medrxiv.org/content/10.1101/2023.06.08.23291154v1 Neurodivergence as a risk factor for Post-Covid-19 Syndrome Rachael K. Raw, Jon Rees, Amy Pearson, David R. Chadwick doi: https://doi.org/10.1101/2023.06.08.23291154 This article is a preprint and has not been peer-reviewed Abstract...

It would have been interesting. Though not convinced it would have been the best use of scarce ME charity funding.

Many years ago, he said he had an illness like CFS. At one stage it was attributed to hepatitis B or C (C, I think).

The latest e-newsletter from the ME Association is just on one item: plugging DecodeME.

Frustrating, though not sure they are in the UK anyway.

Other misdiagnoses/incomplete diagnoses might include: Fibromyalgia, Migraine, chronic pain, IBS, back pain, maybe (misdiagnosed) Lyme & other-tickborne infections if get questionable private tests, glandular fever, etc.