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Background to commentary Patient and public involvement (PPI) in research is now widely expected and encouraged at all stages of the research cycle. PPI members provide expert knowledge of the lived experience and their contribution is crucial. The plethora of publications on PPI has increased...

Reply to: Hypothetical model ignores many important pathophysiologic mechanisms in fibromyalgia, 2023, Pinto et al "In sum, we do not disagree with the substantive points in the correspondence from Clauw et al.1, but we do disagree with how our paper2 is summarized. We primarily aimed for a...

Hypothetical model ignores many important pathophysiologic mechanisms in fibromyalgia, 2023, Clauw et al "We would like to respond to the Perspective article by Pinto et al. (Pinto, A. M. et al. Emotion regulation and the salience network: a hypothetical integrative model of fibromyalgia. Nat...

If anybody has any interest in being unblocked by TG on Twitter.

Copied from News from South America "We are pleased to welcome #MillionsMissing Aliança, which brings #MECFS groups and individuals from #Portugal & #Brazil together. It aims to expand to the entire Portuguese-speaking community." "#MillionsMissing Aliança has a public facebook group for the...

"We are pleased to welcome #MillionsMissing Aliança, which brings #MECFS groups and individuals from #Portugal & #Brazil together. It aims to expand to the entire Portuguese-speaking community." "#MillionsMissing Aliança has a public facebook group for the moment. Join it...

Abstract This study aims to demonstrate the improvements in clinical symptoms in patients with post-COVID syndrome after a community pharmacy-based intervention in Serbia. The Pharmaceutical Chamber of Serbia (“Chamber”) invited pharmacists to deliver post-COVID patient care counselling...

Trial By Error: An Update on the Missing Ethics Corrections in Multiple Esther Crawley Papers "In 2019, the University of Bristol and the UK’s Health Research Authority issued a report about their joint investigation of 11 papers. The lead investigator of all 11 papers was Professor Esther...

Opinions overtook science at HUS Long Covid symposium "On 16 March 2023, HUS organized the international Long Covid symposium ”Navigating the unknown: Exploring Realities and best practices on Long Covid”. About 100 people were present, mainly physicians, among whom were representatives from...

"Research group: Gene expression and immunity Catholic University of Valencia (UCV), Valencia, Spain https://www.ucv.es/investigacion/grupos‐de‐investigacion/grupoclave/1435 Availability of a UCV sponsored predoctoral fellowship towards the completion of a Doctoral Thesis degree in the...

Highlights • Gulf War Veterans with GWI experience PEM. • GWI had significantly lower post-exercise ACTB, COMT, and TLR4 gene expression. • Gene expression did not mediate symptom post-exercise symptom exacerbation. • Post-exercise gene expression differs from responses reported in ME/CFS. •...

Merged thread, link and abstract added to post https://academic.oup.com/jes/article/7/Supplement_1/bvad114.1370/7290078 THU581 Possible Markers For Myalgic Encephalomyelitis / Chronic Fatigue Syndrome Developed In Long Covid: Utility Of Serum Ferritin And Insulin-like Growth Factor-I...

"I stand by my words - I'd be lost without all the support from #pwME - you're genuinely wonderful and so generous. I stumbled on this webpage early on in my #LongCovid journey and #stoprestpace quickly became an essential part of every hour of every day!"

Introduction Many people who became ill with COVID-19 continue to experience symptoms over long periods of time. Generally called “Long COVID,” this condition has been given a more formal medical name: Post-Acute Sequelae of Sars-CoV-2, or PASC. There are many symptoms associated with Long...

Summary Insomnia is associated with fatigue, but it is unclear whether response to cognitive behaviour therapy for insomnia is altered in individuals with co-occurring symptoms of insomnia and chronic fatigue. This is a secondary analysis using data from 1717 participants with self-reported...

Abstract COVID-19, with persistent and new onset of symptoms such as fatigue, post-exertional malaise, and cognitive dysfunction that last for months and impact everyday functioning, is referred to as Long COVID under the general category of post-acute sequelae of SARS-CoV-2 infection (PASC)...

Despite what we might be accused of, I, and others on this thread, are perfectly capable of holding two thoughts. One, that the idea of microclots is worth investigating, even if just to rule it out, and two, that in order to do so it will actually need more than just a series of case reports...

Discussion thread here, Fibromyalgia patients with elevated levels of anti–satellite glia cell immunoglobulin G antibodies present with more severe symptoms 2023 Krock et al

"Young people with eating disorders are coming to harm and ending up in A&E because they are being denied care and forced to endure long waits for treatment, GPs have revealed. NHS eating disorders services are so overwhelmed by a post-Covid surge in problems such as anorexia that they are...

Transferring fibromyalgia patient immunoglobulin G (IgG) to mice induces pain-like behaviour, and fibromyalgia IgG binds mouse and human satellite glia cells (SGCs). These findings suggest that autoantibodies could be part of fibromyalgia pathology. However, it is unknown how frequently...