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Abstract Myalgic Encephalomyelitis/ Chronic Fatigue syndrome (ME/CFS) is a complex, debilitating, long-term illness without a diagnostic biomarker. ME/CFS patients share overlapping symptoms with long COVID patients, an observation which has strengthened the infectious origin hypothesis of...

Abstract Postural orthostatic tachycardia is a syndrome characterized by an elevated heart rate in response to standing. This syndrome typically presents in late adolescence and early adulthood, with a higher percentage occurring in females. This syndrome is often seen following a viral...

Background Functional Neurological Disorder (FND) is considered a biopsychosocial disorder nowadays, with chronicity in >50% of cases. The INTERMED Self-Assessment Questionnaire (IMSA) assesses the various domains and indicates biopsychosocial complexity. Objective FND patients were compared...

From last night.

We are likely to close recruitment at the end of this year.

That we will count our chickens when they hatch. Obviously this will help a lot but I wouldn't want to make a prediction yet.

David Tuller has tweeted about this article. Thread

Sorry, no. By necessity everyone's answers will always be a snapshot of them at the time of completing the questionnaire.

Thanks, and pretty much as I suspected.

Objective: To critically review contemporary theoretical models, diagnostic approaches, clinical features, and assessment findings in Functional Cognitive Disorder (FCD), and make recommendations for neuropsychological evaluation of this condition. Method: Narrative review. Results: FCD is...

? That is a different letter.

Long COVID: answers emerge on how many people get better "More than three years after SARS-CoV-2 began its global spread, an estimated 65 million or more people1 are still living with the often devastating effects of long COVID — and scientists are still struggling to understand this complex...

Paywall, https://link.springer.com/article/10.1007/s00115-023-01516-1 Unhelpfully no preview is available at all. But given the title, the German authors and text, and the references given, I suspect that it is some sort of defence of BPS ideology in relation to ME/CFS. Perhaps somebody who...

Indeed, that will be made clear when we publish our final results. We are not making it clear before in order to reduce the risk of biasing recruitment. In short, nothing. The data analysis plan, which can be read here for anybody else interested, always needed to be able to accomodate...

I don't have the exact figure but it is, relatively, a very small number (<1k) compared to the pre-Covid.

Full title: The Hindi Version of International Consensus Criteria: A Cross-cultural Adaptation and Validation Study for Myalgic Encephalomyelitis in Post-COVID Patients Abstract Context: Fatigue is the most prominent feature of long COVID. With the increasing burden of long COVID cases...

Approx 7k who have already taken part and weren't previously asked for a sample will now receive an invite; the ameneded criteria has been live on our system for a short while so all recent new participants will have been assessed with it.

I am personally very aware and take them very seriously. I can also confirm that, despite claims that I have seen elsewhere, DecodeME are not in any formal collaboration or partnership with ME/CFS Lines.

Twitter and Facebook posts on this update. Facebook: https://www.facebook.com/decodeMEstudy/posts/pfbid0F64qteutoCGxTj3CHxypTi8ux5i4hRfJEvvxcqs44tqo2S6XxgXnCt31WqDcXbxol