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  1. Sean

    Long Covid in the media and social media 2022

    Whatever it takes. *shrugs*
  2. Sean

    News from Scotland

    And want to remain.
  3. Sean

    Edzard Ernst: Quackery is on the rise, and the placebo effect is part of the problem

    the amazing ability of a simple sugar pill or other non-pharmaceutical “fake intervention” to improve someone’s quality of life. 1. There is no amazing ability. 2. By "quality of life" he means short-term, highly manipulated, subjective self-report measures, without confirmation by adequate...
  4. Sean

    Long Covid in the media and social media 2022

    This is encouraging. The reality is starting to break through.
  5. Sean

    Technology-supported Acceptance and Commitment Therapy for chronic health conditions: A systematic review and meta-analysis, 2022, Herbert et al

    Technology-supported ACT shows promise for improving function and ACT process outcomes across a range of CHCs. And always will. Recommendations are provided to optimize technology-supported ACT for CHCs. Shouldn't they establish it does more than shows promise first?
  6. Sean

    Long Covid in the media and social media 2022

    'This letter shows that those at the heart of Government don't understand the condition at all.' And don't want to.
  7. Sean

    Who Hijacked ME?

    I don't know if it is that, or the consequences of producing/using energy. Our energy production system might be okay, but what it is being asked to do, the context in which is is required to function, might be outside its operating parameters.
  8. Sean

    ME/CFS services in the United Kingdom

    It's nothing more than an empire building cult. The important thing to know about cults is that they never end well. For anybody, including the cult leaders.
  9. Sean

    cognitive behavioural and personalised exercise interventions for fatigue in inflammatory rheumatic diseases (LIFT), 2022, Bachmair et al

    unhelpful beliefs and behaviours... ...misperceptions of effort... None of which have ever been demonstrated to exist in patients, let alone to be the problem. They are simply asserted to be true. This is the real psychopathology.
  10. Sean

    USA: Massachusetts ME/CFS & FM Association news

    New patients are typically uninformed and desperate, and that makes them easy pickings for the incompetent and the unscrupulous.
  11. Sean

    Lightning Process - discussion thread

    My son got better with Cognitive Behavioural Therapy from a gifted therapist at King's College Hospital https://www.kcl.ac.uk/people/professor-sir-simon-wessely
  12. Sean

    Functional Neurological Disorder (FND) - articles, social media and discussion

    And the desperate, as most of us here have been at some point, especially early on, and made fools of ourselves, before we learned the real story. I feel very much for patients hit with the FND label and sucked into that vortex. It is an awful situation to be in. But I also know they are...
  13. Sean

    UK: Physios for ME

    And us. Thank you. :):hug:
  14. Sean

    Functional Neurological Disorder (FND) - articles, social media and discussion

    It is a very seductive tale to the uninformed. So the relevance of trauma is...?
  15. Sean

    UK: Physios for ME

    :thumbsup::hug:
  16. Sean

    Functional Neurological Disorder (FND) - articles, social media and discussion

    And what if the hips also have other problems, like osteoarthritis?
  17. Sean

    Psychology needs to get tired of winning, 2022, Haeffel

    I don't wish to write off all of psych. There are honourable exceptions. But the profession is collectively guilty of failing to pull their wayward colleagues back into line. It is outrageous that sick patients have been left to do the bulk of the profession's dirty work for them, and take all...
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