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Well said, Barry.

Is it just me, or is it an enormous waste of money and patients time to spend up to 6 hours spread over 4 weeks talking to patients about how to engage in an upcoming physical activity program? Here's what it involves: Does that really take 6 hours? I reckon half an hour going over a one...

News in Brief - May 2023 Week beginning 1st May 2023 Long Covid Advocacy The Wessely Files Part Two - The Wessely Wizard of Oz The second in a series of articles about Professor Sir Simon Wessely. See March news for our item on part 1. This article focuses on ways Wessely has accrued power for...

I haven't watched any more of this than in my earlier post when I said this: Judging from what others are saying, it sounds to me like Dr Vallings has been conflating with ME/CFS things like burnout, idiopathic chronic fatigue, mild depression and general exhaustion from trying to do too much...

The point about 'toxic filth' is the doctor's declaration that the guideline goes in the bin on the grounds that the name is inaccurate. We still need care, whatever the name of our disease. For a doctor to say the guidelines for our care are rubbish and should not be followed is toxic. He's...

Surprise surprise. I can't see any of them acknowledging to themselves, let alone to others, than they've made idiots of themselves attaching their names to this.

You are right about fatigue being hugely problematic. The more ME researchers divide it up the better, eg: In healthy people: healthy sleepiness due to being bedtime, or lack of sleep, healthy tiredness due to activity In sick people: unhealthy sleepiness due to sleep dysfunction...

News in Brief - January 2023 Week beginning 2nd January 2023 Germany The German Society for General and Family Medicine (DEGAM) published its new guideline on "Fatigue". The chapter on ME/CFS follows and explicitly recommends the NICE and EUROMENE guidelines, as well as the CDC's...

Given that the authors themselves have listed masses of COI's I can't see that commenting on them would be libellous.

I think the opening sentence about fatigue being commonly experienced as tiredness is making a very good point because in the next sentence they go on to distinguish this from pathological fatigue. I think the separation of healthy tiredness from pathological physical and mental...

That's disgraceful. Perhaps warrants a second rapid response pointing this out and quoting the deleted section.

News in Brief - September 2022 Week beginning 29th August 2022 UK Forward ME steering group minutes 10th August. Topic covered include Charles Shepherd's work on monitoring NICE guideline compliance; Department of Health and Social Care working groups; Millions Missing; and Decode ME. Minutes...

Kate Fryer and Christopher Burton Academic Unit of Primary Medical Care, University of Sheffield, Sheffield, UK Tom Sanders Department of Social Work, Education and Community Wellbeing, Northumbria University, Newcastle upon Tyne, UK Monica Greco Department of Sociology, Goldsmiths, University...

News in Brief - June 2022 Week beginning 6th June 2022 UK Parliament The Health Secretary Sajid Javid held a roundtable meeting with researchers, representatives of patients and patient organisations, and of research funding bodies. Those present report a useful meeting. Tweet from Javid here...

Quote from the section on training days for GP's Symptoms Science An integrated model of symptom perception: brain-body signalling and symptom perception Multiple causal factors: comorbid diseases; genetic / epigenetic; early life adversity; neural plasticity; interoception; autonomic; immune...

I think it's good that they are trying to use wearable technology to help tease apart different aspects of pathological fatigue and distinguishing it from healthy tiredness. And that they acknowledge from the start that PROMS are not adequate for understanding or measuring pathological fatigue...

That's really horrible and seems to be based entirely on prejudice.

Block him and forget him. Why waste time on fools?

That makes sense to me, as assessing fatigue caused by the specific conditions included would be complicated by someone also having CFS. They seem to be basing their assumptions about how to measure fatigue with a heart rate monitor on other studies that found ME/CFS patients had lower heart...

Developing, optimising and implementing a blended digital self-management tReatmEnt for FatigUe in multiplE scLerosis REFUEL-MS This naming nonsense is insulting to patients on whom this is inflicted and in whose name the funding body is wasting millions. Just to illustrate how stupid it all...