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  1. Arnie Pye

    Serum Metabolic Profile in Patients With Long-COVID (PASC) Syndrome: Clinical Implications, 2021, Pasini et al

    No, I hadn't seen that. Link : https://www.frontiersin.org/articles/10.3389/fmed.2021.714426/full Title : Serum Metabolic Profile in Patients With Long-COVID (PASC) Syndrome: Clinical Implications I found this bit from the Abstract interesting : These patients appear to have Anaemia of...
  2. Arnie Pye

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    So, the majority of LC sufferers are coming from a group of women who are of an age to have started their periods in the previous 10 years up to and including women who may have stopped having periods in the previous 10 years. I wonder how many of them were iron deficient before they got Covid?
  3. Arnie Pye

    PHD Project: A mixed-methods investigation of the role of illness perceptions in endometriosis, 2020 - 2023

    When I complained of intolerable pain I was told that all I needed to do was get pregnant. I was also told not to wait until we had a bigger TV or a second car, but to try now and this would cure my pain. I always found this kind of comment insulting and a way of trivialising what was wrong with...
  4. Arnie Pye

    PHD Project: A mixed-methods investigation of the role of illness perceptions in endometriosis, 2020 - 2023

    I've only just realised this is an article/paper written by a student who is hoping to get a PhD. Not that that makes it acceptable. In some ways it makes it worse. It makes it clear that (presumably) young students are getting drilled in switching cause and effect, how not to have any empathy...
  5. Arnie Pye

    Lightning Process - discussion thread

    Merged thread Toxic Positivity: My experience of the ‘lightning process’ Edit : I've just realised that my post and its title implies that I wrote the reddit post. I want to make it clear that this is not my reddit post! I've never done LP and have no plans to either. ... Posted on Reddit on...
  6. Arnie Pye

    Protocol: Understanding and restoring dopaminergic function in [FM] patients using a mindfulness-based psychological intervention, 2021, Ledermann

    They are paying people to take part in some luck-based totally pointless "game". In what way can this be adapted to real life? It sounds like total nonsense to me.
  7. Arnie Pye

    Diagnosis and management of functional neurological disorder, 2022, Aybek and Perez

    There is no end to the number of medical conditions that can be disbelieved, dismissed, and left untreated if FND is now a "rule-in" diagnosis.
  8. Arnie Pye

    Brain Structural Changes during Juvenile Fibromyalgia: Relationships with Pain, Fatigue and Functional Disability, 2022, Sunol et al

    For those, like me, who have never heard of it before : https://en.wikipedia.org/wiki/Voxel-based_morphometry
  9. Arnie Pye

    Pelvic Congestion Syndrome

    I could have got the wrong end of the stick here about your condition. But if you have endometriosis you could well have adhesions or scarring as a result. They are more likely to squeeze blood vessels and possibly pull or distort nerves and blood vessels.
  10. Arnie Pye

    Pelvic Congestion Syndrome

    "Pelvic congestion syndrome" is not a term I've come across very often but when it is used it seems to be used in much the same way that FND or primary dysmenorrhea is i.e. as a term used in gaslighting women who have severe gynaecological pain from conditions like endometriosis that the doctor...
  11. Arnie Pye

    The Effects of Messaging on Long COVID Expectations: An Online Experiment, 2022, Mills et al

    From the paper linked in post #1115 : They might as well have said : The views expressed are those of the author(s) and not necessarily those of the NIHR, UKHSA or the Department of Health and Social Care but we all know they will be once those organisation find out if they save money and...
  12. Arnie Pye

    Differences Between Women and Men .. in the Rate of Diagnosed Diseases After a Diagnostic Intervention is Conducted ... , 2022, Rosmalen et al

    Another issue for women in relation to iron is that once a woman is past menopause doctors assume they can't be deficient in iron, which is total nonsense.
  13. Arnie Pye

    Personality, Defense Mechanisms and Psychological Distress in Women with Fibromyalgia, 2022, Romeo et al

    I'm guessing here, but I would guess that many patients with FM are probably on anti-depressants. Alexithymia often affects people on anti-depressants. Doctors shove anti-depressants at women obsessively and FM is one of those conditions often assumed to be rooted in depression. Harm...
  14. Arnie Pye

    Differences Between Women and Men .. in the Rate of Diagnosed Diseases After a Diagnostic Intervention is Conducted ... , 2022, Rosmalen et al

    Back pain - is poorly treated in both men and women. Patients of both sexes get told they have "lumbago", need more exercise, should sit less, eat less, and move more. Using an n=1 sample (my husband) an obvious difference between the treatment of back pain in men and women is that men are...
  15. Arnie Pye

    Subjective Cognitive Dysfunction in Patients With and Without Fibromyalgia: Prevalence, Predictors, Correlates, and Consequences, 2022, Wolfe et al

    I'm confused. This paper refers to Subjective Cognitive Dysfunction. Who is declaring it to be subjective? The patient or the researcher?
  16. Arnie Pye

    GERD, acid reflux, heartburn and hiatus hernia

    I have tried a wedge pillow/cushion in the past and hated it. I somehow ended up bent in the middle and it very quickly became, firstly, uncomfortable, and then excruciating. I have acid reflux and severe heartburn and raising the head of my bed worked much better for me than a wedge, and it...
  17. Arnie Pye

    BBC article: Specialist mental health unit failures exposed by patients

    One problem with the mental health sector is that more and more private companies, several of them US-based, have managed to get contracts in the UK to provide mental health services. And if your profits depend on not releasing patients then you simply don't release them. Some rather old (2017 /...
  18. Arnie Pye

    Long COVID risk - a signal to address sex hormones and women's health, 2021, Stuart Stewart et al

    From the link given by @Wonko : I really don't believe that the combination of symptoms given is unique to perimenopause and menopause. But doctors and researchers believe that women are slaves to their hormones, don'tchaknow, so something to do with periods must be the answer to all their...
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