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Can’t do recliners - I have pets, lie on my side, find then uncomfortable, hence seeking a source of assessment or info on how to lie, Ineedto be horizontal more than vertical

Good call! I know a lot of pwME are “sofa-bound” and we should have advice on how to do that well, I’ve been searching all over and I think it’s a real gap.

I spoke with Occupational Therapy and they said they don’t cover that sort of thing, but try community physio. I have to say I think daybeds look really uncomfortable and bulky, think I’d prefer a normal bed!

Does anyone have any advice about how to lie down/recline well? I lie on the sofa around 10 hours per day, and I’m not sure it’s ideal for me to be lying/propped on my side. However I like to leave my bed for sleep only, due to sleep hygiene. Plus I prefer to spend the day in my kitchen/living...

Oh -graded exercise. For my Fibromyalgia.

Phenergan! And no caffeine.

No just made my ME worse! Actually it was in an old part of Bart’s where you had to walk up a huge staircase, probably an early ATOS prototype (you walked up the stairs, you can’t have ME) It’s freaking me out now, at the time I’d put a lot of faith in him and now I’ve realised who he is

Hi all I was reviewing some ME history and PACE trial stuff last year when it suddenly hit me -That Peter White was the Peter White I saw at Bart’s in 2007. I had mild ME at that time and was still working. He diagnosed me with Fibromyalgia. He asked a really leading question - which is worse...