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Yeah, this is just annoying. He's one of those ones who recovers and believes that he has special insights. As if most people with ME/CFS don't have a good go at giving their bodies their best chance of healing... That seems a very limited and unnecessarily negative view of things from a...

It's a reasonable conclusion to draw, given the way they phrased it. I think it's rather misleading although probably not intentionally so. Long Covid is a very loose entity. If people are getting milder Covid-19 infections, then it's not surprising that some are not getting the persistent...

androgenic steroids Figure 3b shows that of the 15 or so steroids, cortisol is not one found to be different. ________ 73 unique features they believe are particularly useful in separating the recovered and LC groups

I think this study may suffer from an overly permissive view of what Long Covid is. That, coupled with their hospitalised samples means that the biochemical markers are not necessarily relevant to LC ME/CFS. The Recovery factor is the combination of the parameters that best differentiated...

Blankets are good even with a duvet. I have cotton ones that I put on top of the duvet+duvet cover - because the dog likes to sit on the bed and look out the window. It's a lot easier to wash a light cotton blanket and put it back on the bed than deal with all the duvet drama at the same...

It's so incredibly patronising. The inference is that the problem is that the complainants have somehow failed to understand the intricacies of Cochrane's complaints process. When the problems have had nothing to do with the complainants understanding of Cochrane's complaints process (unless...

Sure, as in 'We've looked at all your specific complaints, and we don't find anything to be worried about. End of story. Move along please.' Because of the way Cochrane is set up (i.e. a law unto itself), I don't know that they have to provide any further detail.? I presume this is part of...

Looks like a revision, although still with the same number of participants, and still a preprint.

Yes, I think that could be a useful outcome. Of course we can't say anything about the people who believe that they were cured by a specific intervention and so aren't in the registry. But retrospective reports of harm do count for something in a well characterised group of people diagnosed...

I've made some posts on this thread: https://www.s4me.info/threads/news-from-cochrane.7024/ with excerpts from their 2023 Annual Report. They seem to be moving to a model of open access for their Library, supported by fundraising.

The World Health Organisation, I'd say. Not so much frightened of, but concerned about maintaining its reputation with the organisation.

More excerpts from the 2023 Annual Report: How to spin a debacle as a positive! - that's the masks review with its Altmetric score of 26,000. Number 2 on the list had an Altmetric score of just 3,000. Moving to Open Access will presumably require a different funding model. This seems to be...

https://register-of-charities.charitycommission.gov.uk/en/about-the-register-of-charities/-/charity-details/1045921/financial-history On the finances of the Cochrane Collaboration, it appears that they had no UK government contracts and received no UK government grants, at least up to the end...

https://register-of-charities.charitycommission.gov.uk/en/about-the-register-of-charities/-/charity-details/1045921/trustees Just noting that the Cochrane Collaboration is a charity governed by the Charity Commission of England and Wales. Many of the Trustees appear to have changed in...

Wool is good for winter. I like down/feather for the other seasons; the cover does need to be a high thread count though to stop feathers coming out. Perhaps you could try a matching pillow from a supplier that has a suitable duvet to see if you are allergic? I've never tried a silk-filled...

Yes, I think the decline in VO2max on the second CPET is not nearly as cut and dried an objective marker as Todd is suggesting and as we would all like it to be. I can understand the psychosomatic people being skeptical of that. Unless I have missed a study somewhere, we need a better study...

Sometimes when I stand, doing the dishes or cooking dinner, I am fine to start with and then feel very unwell and my limbs are heavy. I feel that I must lie down or sit with my legs up. Often then I have to stop what I am doing, even if it is in the middle of grilling something or whatever...

A lot of these people with Long Covid sought medical care for Covid-19 infections. Probably a lot of the reported pre-LC-diagnosis was the hospitalisations due to the Covid-19 infection. So, it seems a bit disingenuous to comment that the people have swapped out acute care for more...