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Me too.

https://www.virology.ws/2020/10/01/tria-by-error-royal-society-of-medicine-webinar-on-long-covid/ Alastair Millar says Yet we know that the majority of these "other centers" neither collect nor record patient outcomes & certainly have no clue what happens to patients in the long term. The...

I know! I knew no better. Discovering that I could neither do any of the physical activities I previously enjoyed nor the cognitive ones was immensely frustrating. I found it so difficult to believe my life could be reduced by so much, that I could lose so much - job and finances just being a...

On the topic of trying to isolate / understand cognitive induced PEM - I had forgotten about it but at one point I did use exercises to try to train up my brain. As I was used to technical problems solving type issues from work and I was clearly struggling to do that I decided to try something...

Nope. When I had a working brain I thoroughly enjoyed reading technical documents - it was part of my job. I can't say I'm terribly interested in legal documents but I like getting my head round things. So, even if it's not something I would necessarily want to do, I would still get...

My OI is relatively mild, especially in cool weather. So let's assume I'm sitting down with my feet up & back supported to minimise that - Reading will involve using the eye muscles so can trigger physically induced PEM that can easily be confounded with cognitively induced PEM for me...

Hmm. Wasn't that what convalescence was for - to help people rest and recuperate while experiencing debilitating after effects post infection? Perhaps if medicine hadn't been so keen to simply take the word of certain self appointed experts in the 80's we'd know a lot more about post viral long...

Riiight. What a load of old....... When I eventually sought help for my symptoms, like an idiot I was relieved to be told I had ME. I only knew what I had read about it in newspapers. From being scared there was actually something seriously wrong with me I was kind of pleased to think it was...

At times it may be hard to tell the difference but, for me, there is a difference. Increased fatiguability will certainly lower my PEM threshold and being in PEM will increase my fatiguability so there's a very strong relationship between two different things, I think. For me, cognitive PEM...

We're expect this but some of us are no longer used to it because we simply can't afford the toll it would take on our health to do it. Many of us just don't bother anymore. Never mind going to an outpatient clinic some of us take risks by not attending A & E on occasion when we should...

Based on the questions you posted in #56 above (sorry not got the necessary to reread) they seem to think it's a predictable thing and people will be able to give precise answers. That is absolutely the opposite if what living with ME is like unless you're very severe and can do very little, in...

Yep. It takes a lot more self discipline to stop than it does to keep going.

I find PEM caused by cognitive exertion a very tricky beast. For me it is most likely to hit immediately or fairly quickly. How quickly it resolved depends on how much I've pushed (assuming I haven't pushed physically). What I do is as important as how long I do it for - like with physical...

Walking is definitely easier than standing for me. As long as I can walk at the pace that's right for me, I can walk for longer than I can stand and I'm far less likely to feel like I'm going to collapse. My OI is probably milder than a lot of other people's but it is always worse with PEM.

As @Ravn says many activities will involve different types if exertion. Cognitive activity - If I were in the same state PEM will occur much sooner & the deterioration is more rapid with cognitive exertion. I may still have a collection of general physical PEM symptoms that constitute "malaise"...

I actually did regain a little of what I had lost but muscle tone rather than mass. Only by taking it very, very slowly and carefully. In hindsight I'm not sure I did myself any favours. I no longer have the capacity to even consider trying it. :(

I'll try - I may have to come back and try again, so tell me if I'm not making sense. It's where I am alert and let's say someone asks me a complex question. If I go out to the chemist to collect your prescription tomorrow would you like me to buy you some apples at the greengrocer's? It's...

Earlier on & when less severely affected by ME, I could slowly rebuild and maintain muscle tone if I very carefully avoided aerobic exercise. Until I became severe enough so it was no longer possible. I find myself wondering if attempting to maintain muscle tone (& rebuild after setbacks due...

The thing with PEM is the whole of the thing is greater than the sum of it's parts. In the same way simply individually cooking & laying out all the ingredients for a complex dish - let's say a curry- and eating them separately does not in any way equate to eating a curry that could be made of...

The M3 device arrived today. I've already had a go & it's very easy to use. Also can be configured to store readings for two different people if that's needed (I don't). I'm happy with it. Especially as I got money off because there's a new model out. :thumbup: