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This is the same problem that has dogged ME patients for decades. If it worked for me then it should work for everyone else, if only they would accept my word for it. If you wanted to get better you would try it. Of course, when they make a business out if it it also suits if not everyone...

Yep. I get it too. It's difficult to describe without someone leaping to out words in your mouth. It is definitely not palpitations - I know what they feel like thanks to anaemia & the occasional need to adjust T4 levels. Tuning fork describes it well.

This drives me mad. It disappears for ages and then suddenly it's back. Nearly always like drops of freezing cold water rolling down my scalp.

See, now you're just talking sense @Barry. They don't like that!

You'll note she forgot to say "paid" privilege.....

Apart from @Tom Kindlon's paper I don't know of any. Any trial should look for harms as well as cures. Different standards have been allowed for far to long in the field of mental health. They get away with it because, if the patient becomes worse or hurts themselves, then they can blame the...

And while they're at it accuse everyone else of stigmatizing mental health patients. If subjecting those patients to treatments with such poor evidence of safety or efficacy isn't stigmatizing then what the hell is? Except that having gotten away with it for so long there's mission creep for...

Rona Moss-Morris There is no evidence that any of your behavioural treatments do anything other than keep you and your pals in work.

I know I react strongly to MSG but I also have issues with sauerkraut. However, I suspect the sauerkraut reaction is down to my gut "disliking" fermented products so this isn't necessarily because of glutamate, though I may also be reacting to that. Not straightforward.

From personal experience even quite small changes in what, how much and when we eat can produce a significant effect. Especially, if we don't usually make conscious decisions about food and consider what suits our bodies. Let's face it, few do. For example - if the flavour of your favourite...

Stored, cooked rice can certainly make you sick. Not sure if it triggers vomiting too? These are classic MSG symptoms for people who don't get on with MSG. I'm not a big fan of chinese food and am very, very careful about where we get it on the rare occasions we do have it.

Completely agree. The use of MSG is curious given how badly some react to it. In the early years if being ill my husband and I went for a rare meal out. He wasn't as knowledgeable and involved in helping back then. He knew I had to be careful about what I ate. Anyway, I had my back to the...

I'm not negative about it. It's something that could be very useful. I think it's important that we don't overstate what something can do or results can show. We have to be as objective & critical about this as about a BPS paper that makes a claim that goes beyond what their data show.

Hmmm....it might be useful as part of a research trial to provide objective measurement. In terms of categorizing severity - no, I don't think so. Gross oversimplification of the effects of the condition there. Especially, for those who are less troubled by POTs but might still be severe -...

Fantastic news! :thumbup:

If a person were pain free and didn't want to go for a walk, go to work, unload the dishwasher because they were scared it might hurt then, maybe, consider the catastrophizing label. If someone is in some discomfort and is scared to go to the dentist because it might hurt then that's maybe a...

No, it doesn't. It doesn't even add to academic knowledge of the disease. Complete waste of funds. This is an abuse of the role of gynaecologist and researcher. What's more, it makes one question - all those women who gave intimate details to these guys in the hopes of getting help. All...

Thank you @Robert 1973. :thumbup: Great letter! I think you were right to keep it clear & simple. It's such an absurd claim that it makes a great hook to tempt people to look further into it. Especially, now that so many medics are experiencing the patient perspective for themselves. Rest...

Yep. It's cost me a fortune in dental work. I had a mouth splint that covered my whole set of upper teeth but I found it very fatiguing on the face muscles. These days I have a much smaller splint that just covers the upper 4 front teeth. Much more comfortable.

Hmmm.... The abstract clearly states Bolding mine. *Raises voice to ask if anyone's got a copy of the latest BPS dictionary? I need to look up "All"*