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  1. shak8

    Domestic abuse survivors twice at risk of long-term illnesses

    Compared to the increase in fibromyalgia diagnosis in the exposed group, the increase in ME/CFS was slight.
  2. shak8

    Is insulin resistance the cause of fibromyalgia? (Prelim report) (2019) Pappolla et al - Retracted Dec. 2019

    These are not very informed researchers, viz a viz review boards (IRBs) and patient identity protections.
  3. shak8

    What happens to muscles in fibromyalgia syndrome, 2019,

    to add: https://www.ncbi.nlm.nih.gov/pubmed/2644673 I hope this link works, has 1989 research listings on pubmed
  4. shak8

    What happens to muscles in fibromyalgia syndrome, 2019,

    Just for the record, from research in the 1990s, no pathology found in the muscle tissue via microscopic analysis of fibro patients.
  5. shak8

    Pain in ME–what helps you and what can I do?

    I have moderate to severe fibromyalgia and yes, I must stop any repetitive muscle activity because vast areas of my body are centrally sensitized. I use hot pepper cream (0.1% capsaicin--but have to be careful not to get on hands or privates) for mild pain relief of several hours. It also has...
  6. shak8

    Unravelling Fibromyalgia-Steps Toward Individualized Management (2017) Hauser, Clauw, et al.

    I've been reading research since my 1996 diagnosis and wondered about the research results stating high incidence of childhood abuse in FM patients, as well as high history of mental illness. (The team out of Oregon Health Sciences Center did some of that research, as well as developing the FIQ...
  7. shak8

    Unravelling Fibromyalgia-Steps Toward Individualized Management (2017) Hauser, Clauw, et al.

    https://www.sciencedirect.com/science/article/abs/pii/S1526590017307009 What I liked is this simple approach to categorizing fibro: as mild, moderate, and severe. Based on daily functioning. Patient an active partner in determining management of illness.
  8. shak8

    Effects of attachment-based compassion therapy on brain-derived neurotrophic factor and inflammation among fibromyalgia patients, 2019, Montero-Marin

    You know, when I first read the title of this research, I said to myself: oh great, the health care professionals are going to be compassionate toward you and display attachment behaviors (like the concerned care of a good mother, always wanting the best for you). Well, no. Not only no, but...
  9. shak8

    Mayo Clinic Guide to Fibromyalgia: Strategies to Take Back Your Life By A. Abril M.D. & B.K. Bruce Ph.D. L.P., Mayo Clinic Press (2019)

    Good luck on taking back your life. Not going to happen. You adjust. "Taking back your life" signifies that you will return to your life; the title is that glorious placebo of false hope. The reality is quite stark. You have a vastly reduced life (depending on severity). Mayo advice seems...
  10. shak8

    Ron Davis’s big immune study is looking at HLA genes (HLA, WTF?) Here’s the story. [Simon M blog]

    I've done pre-transplantation blood work (HLA typing) on dialysis patients. HLA of donor and recipient patient have to be the same (to "match") otherwise immediate organ rejection happens. Nice to hear more about HLA system.
  11. shak8

    Effects of attachment-based compassion therapy on brain-derived neurotrophic factor and inflammation among fibromyalgia patients, 2019, Montero-Marin

    Nice introduction in the study, a review of what is known about fibromyalgia. I would posit that the principles of attachment-based compassion develop organically in the person with fibro (in her own way and in her own time). A sort of radical gratitude toward oneself and toward others...
  12. shak8

    Acute effect of strength training on mood of patients with fibromyalgia syndrome, 2019, Andrade et al

    As someone diagnosed in 1996 with moderate-severe fibro, there are times when lifting a fork to eat something is painful. I have never, ever been able to do 3 reps of lifting soup cans, much less 12 reps w/ repeats, or using Therabands, weights, or extending my arms eccentrically. Legs are...
  13. shak8

    NPR: The Placebo Effect Works And You Can Catch It From Your Doctor

    Medical establishment has lost their grip on hard science. Caved to popularity of unproven and unprovable alternative (complementary) bs. Yes, medicine doesn't have many, many answers. Wishful thinking, placebo response, oh what a lively waste of money it is. Patients are at fault, too, for...
  14. shak8

    What Does Neuroscience Tell Us About the Conversion Model of Functional Neurological Disorders?, 2019, Cretton et al

    Hang on, when a psychiatric disorder is clearly predominant, don't lump it into this FND category. Just because every generation has to rearrange its categories due to new science or just the need to move the furniture around and write papers about it, no reason to throw out good science and...
  15. shak8

    Examining Hope as a Transdiagnostic Mechanism of Change Across Anxiety Disorders and CBT Treatment Protocols (2019), Gallagher et al.

    'Hope' as a concept seems too abstract. Also, it seems rooted in superstition, such as hoping someone gets better from a fatal illness or some such. It's akin to praying. Goes against pragmatism, which, is more valuable because it's more realistic. 'Hope' as a concept seems idealistic...
  16. shak8

    Qigong exercise for chronic fatigue syndrome, 2019, Chan et al

    Perhaps we know by now why these Hong Kong residents experience sleep dysfunction, anxiety, and depression. Political reasons?
  17. shak8

    Open Tracking Peripheral Immune Cell Infiltration of the Brain in Central Inflammatory Disorders Using [Zr-89]Oxinate-4-labeled Leukocytes

    It's not Jerrud Younger. It's Jonathan McConathy, MD, PhD Contact: April Riddle, BSRT Their contact details are on the Clinical trials document. You could tell them what's wrong with Fukuda.
  18. shak8

    Effect of pain on relationships...my personal take on Pedro Almodovar's condition

    Pedro Almodovar's new film, Pain and Glory, is semi-autobiographical. I was interested in what he's said in interviews because he suffers from migraines and photofobia, back pain, tinnitus, among other maladies, and severely. There may be other illnesses as well. He said recently that he finds...
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