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Would it be better to use a phrase that is neutral about the perpetrator’s intent. ‘Gaslighting’ implies the perpetrator is both aware of what they are doing and are intentionally doing it to undermine the ‘victim’? No doubt in some situations there is both a level of awareness and malicious...

Though we do not yet know the possible levels of the Long Covid of the form similar to ME/CFS we will see in children or young adults exposed to the virus. This may not currently seem to be the normal course, but even it effects just a small percentage it can still devastate young lives and...

Yesterday I was sent a link that may help people access the Times article behind the pay wall. Also if it works you get to see the comments, some reflecting the harm this article is contributing to for Long Covid sufferers as well as on people with ME by advocates of the psychosomatic, by...

Unfortunately not as balanced an article in today’s London Times, Why is Britain now the capital of Long Covid? see https://www.thetimes.co.uk/article/why-is-britain-now-the-capital-of-long-covid-grjpvzfvw?fbclid=IwAR2sVlCexvcM6vFUd4nM_eL2-X_5D2Qbr2nFCMVdy2K1P09EMmGSdF1ygFs Sorry it is behind...

Interesting that they are trying to understand their client group, but still get it so wrong. (What follows is for readers here preaching to the Choir, and is probably written as much for my own benefit, so I don’t necessary recommend people bother to expend energy reading it.) In relation to...

Why can people not accept a simple precautionary principle: if you respond negatively to exercise then don’t try to exercise through that negative reaction? Rather establish your own threshold and remain within it. If you don’t have a negative response to exertion, then feel free to continue to...

An other question I wonder about is there a hierarchy of symptoms, or even several hierarchies of symptoms. For example do some symptoms only appear if you already have other specific symptoms, in which case specific symptoms or symptom patterns may be indicative or associated with the severity...

Over the years new symptoms have been added to my ME, and they now re-emerge during PEM. However when I am in a period of relative remission not all the symptoms reappear in every PEM episode. I usually consider two options in relation to this variation, how well overall am I managing my...

As this is undertaken more routinely with people with ME, it may be that CPET is seen to be necessary for an ME diagnosis, so in that sense it may become part of the diagnostic process, but as it is obviously not sufficient for an ME diagnosis in another sense it is not uniquely diagnostic...

Do we know that ‘fatigue’ (presumably idiopathic) is something that can be treated by CBT and GET, there has just not been the research? Such as PACE is equally bad at answering any questions about intervention for the symptom of chronic fatigue in isolation as it is about treatment for ME. The...

Presumably this question is aimed at picking up patients with false beliefs. It is based on an implicit assumption that the doctor is always right, and any one that disagrees with ‘him’ (deliberately chose not to be gender neutral, to raise the gender issues, it would be interested to know if...

I don’t have strong views either way on the persistent or recurrent virus theory, and a total failure to identify any ongoing presence of the trigger virus is a problem for this approach, however not an insurmountable one. If I have not misunderstood, don’t some already propose that the...

Much easier to ready. Especially as I will need to read each several times to fully assimilate.

I managed to read the font but found it more tiring and consequently harder to understand the content. @JemPD, if you do get permission to create a more readable format would it be work asking if any files could be posted here or added as comments to the original blogs? [added I struggled with...

Have so far just read the first blog. It is a very important topic and covers much history that I was not aware of. However, though agreeing with what is said, did the blog present enough evidence to draw such strong conclusions. Though I agree cost reduction and profit is the best fit for...

There was someone a few years back selling their own ‘miracle cure’ whose life was centred around their local tennis club. They may have been or have become a tennis coach. I can’t remember if it was one if those dreaded magazine or popular newspaper articles that advocated hard work and...

Should we start a petition demanding that Prof Crawley be limited to only one acronym a year, though even that is one to many.

I am looking forward to reading the article in full, but wonder if there is a danger in using phrases like the ‘Wessely School’ as it suggested a stronger coherence of thought amongst the BPS advocates than actually exists. Are we in danger of doing what the members of the Wessely School...

Given our current knowledge is it reasonable to expect anywhere near 100% on any physiological measure. We have a range of operational definitions of ME/CFS which are evolving in a bit of a ‘pulling ourselves up with our own boot straps’ way, that we reasonably hope refer to a real biomedical...

This is very possible, as technically there are no minutes for a meeting until the draft minutes have been responded to, if necessary altered and then adopted at the next meeting. When I used to put my parish council meeting minutes on our community website, the parish council wanted something...