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Are these authors working on the principle that if a symptom persists beyond any acute condition after the end of the initial cause, eg an active viral or bacterial infection, it is by definition ‘functional’ or ‘somataform’? Certainly they do not seem to think that an initial biomedical trigger...

Not only has their work been peer reviewed but it has been peer reviewed by researchers equally “eminent and free of selfishness or bias”. And we know that this is true because the peer reviewers are all from the same grouping of academics working in over lapping university departments and with...

Isn’t the problem that we need an additional mechanism to explain why some people improve, others remain stable, others experience relapses and remissions and yet others experience on going deterioration. I am not sure this model easily fits the course of my ME without postulating other factors...

Struggling with reading comprehension this evening so may completely have got the wrong end of the stick, but are we looking at two possibilities for long term conditions The incorporation of virus RNA into the individual human’s DNA which is then replicated by normal cell devision. Presumably...

Isn’t the problem finding viruses lurking undetected long term that they are dormant, so could this explain an ongoing symptomatic condition such as ME? There are active viruses such as Hep C that can be active on an ongoing basis, there are viruses that can remain dormant in difficult to...

Though Dr Horton was helpfully outspoken in the British press about the acute aspects of the pandemic (it really peeved me that I had to agree with what he was saying), until he acknowledges the failings of the PACE trial he is leaving many people with Long Covid at risk of harmful misguided...

Although in principle I support the use of pooled data nationally to improve services, it is also a matter of trust. I do not trust the current UK government to not make use of this data against my interests or not to sell it to private companies that will.

It must take skill to so persistently answer questions that weren’t asked and to ignore those that were. The BPS advocates seem to have taken up with glee the assertion because ME is defined by self reported symptoms it must be appropriate to research it only with subjective questionnaires. To...

Thank you for all the comments, hopefully I will be up to having a go at incorporating them all in a redraft over the next few days.

Personally I have had positive experiences of counselling and CBT, though both at times when my ME was in relative remission, and I was an active participant in the then therapy and personal growth culture before the onset on my ME in the 1980s. However with our current state of knowledge...

When I started working with adults with physical disability I was in my late twenties, and many of my patients were the same age as me, many were from a similar nondescript urban middle class background to me. It really struck me then how much I had taken for granted: teenage rebellion...

Well obviously the reason for supernaturally mediated murder lies in the behaviour of the victim so appropriate CBT is essential (Clairvoyant Behavioural Therapy). The satisfaction ratings by participating victims are out of this world. This has potential value for the victims of lots of other...

@Kitty, @Invisible Woman and @Snow Leopard thank for these useful points. It is always much harder than I think to put something down on paper that is straight forward and unambiguous.

Are murders that cannot be attributed to a named human agent the consequence of diabolical interference? If the police can not find evidence for a murder having been committed by a named person the only logical conclusion is that the murder was not committed by a human, but by a malignant...

What has happened to measurements of brain activity? When I was an undergraduate over forty years ago there was such optimism about what might be possible. I remember the excitement when one of my lecturers identified his ‘yummy, yummy, I see a banana cells’, that was a small group of neurones...

We increasingly tend to have a cultural assumption that ‘talking is good’. But we do not know that this is always the case.

Given this is about onset, I was trying to include information from those that appear to have had multiple onsets. This was not an attempt to access information on improvements and deteriorations, that are part of the cyclic nature of many people’s disease pattern, as this would enormously...

Moved from this thread: Research papers on type of onset (infectious, gradual etc)? Not sure if this is useful but I have attempted to list what questions would need to be included in an survey of onset types, though obviously it is still open to problems of respondents misremembering or being...

It is certainly of interest getting a better handle on the factors associated with onset, and it may be that better studies/surveys will significantly advance our understanding, however it may be that there will always be grey areas. For example my onset was presumed to be associated with EBV...

Would this be a useful research project, to provide people with ME good social worker, advocacy and carer support and see how this impacted their activity levels/types and quality of life?