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  1. rvallee

    Physical fatigue is in the brain as much as in the body, 2022, Robson

    Honestly anyone who watches even a bit of sport is well aware of how random performance can be. Some professional athletes can go on weeks' or months' long streaks of high performance, then drop down to barely contributing. The reasons for that are numerous, often small injuries that take that...
  2. rvallee

    A review of the treatment of functional neurological disorder with intensive short-term dynamic psychotherapy, 2022, Russell et al

    That says a lot. I remember some days ago there was some BPS ideologue ranting on Twitter about how to us patients biomedical progress amounts to "breakthroughs" while making progress from a BPS perspective is junk. And by their own admission: results where the primary outcome failed are...
  3. rvallee

    To the emergency room and back again: Circular healthcare pathways for acute functional neurological disorders, 2022, Williams et al

    It's pretty wild that when you think of it, they are making the exact same mistake twice. They are looking at sick people whose health issues are discriminated and where all available support is withheld on purpose, and cannot reason why this is happening, cannot possibly imagine that neglecting...
  4. rvallee

    Supervised, individualised exercise reduces fatigue and improves strength and quality of life more than unsupervised home exercise.., 2022, Shah et al

    I'm not sure trying to decipher anything from this works any better than reading entrails. It's pretty clear that this trial formula yields completely unreliable results where the interpretation does at least 99% of the work. It's just fuzzy maths corralling guesstimates into the expected shape...
  5. rvallee

    an ‘invisible’ illness that benefits from a relationship-based care approach – BJGP Life, 2022

    The usual condescension from one of the arsonists who soooo honestly wants to understand how to make the patients live with the fire they lit. Soooo compassionate. It doesn't need any special treatment, all it needs is to be properly medicalized, to make up for charlatans like Chew-Graham who...
  6. rvallee

    Silent/soundproof living: tips and guides to achieve living in silence

    Especially with the M1 chip, Macs are really great for noise level, strong recommend. Not for me though, too much trouble switching OS, but for noise they are great. But the price of upgrades, though... ouch. The base Mac mini model is one of the best deals out there, but they charge 3-4x for...
  7. rvallee

    Graded Exercise Therapy for Patients with Chronic Fatigue Syndrome in Secondary care: a benchmarking study, 2021, Smakowski, Chalder et al

    Opening with a blatant lie. Of course. Typical. None of those trials are controlled, of course. They are randomized clinical trials, somehow the continued use of RCT, which usually implies controlled, possibly distorted their thinking enough they don't even think twice about repeating a lie...
  8. rvallee

    Physical fatigue is in the brain as much as in the body, 2022, Robson

    Every time I see the general argument of "the mind can X", I can only think of the fact that the Moon can fall on the Earth. It definitely won't because of its orbital alignment and mechanics, but if it had a different orbital alignment, it could, which means it can, it is feasible, possible. If...
  9. rvallee

    Long Covid in the media and social media 2022

    Not 100% sure about this guy, he got many things wrong at first, but seems to be learning. It's known that his son had(still has?) LC, so good chances it's first-hand experience with the consequences. But he is influential, former White House adviser and ex-administrator for Medicaid, the...
  10. rvallee

    Who is Simon Wessely?

    In case anyone is wondering whether he may have influenced how the UK government handled the pandemic, it certainly appears so, and ongoing. It would be very important to have access what was said on the issue of Long Covid, how his advice over "mass hysteria" and "cultural illnesses" may have...
  11. rvallee

    Long Covid in the media and social media 2022

    The continued denial and misrepresentation of Long Covid is just another chapter in a long line of suffering and neglect, and it looks just the same. The same suffering, the same patterns, the same disrespect. Thread with many replies from pwLC (and some pwME) of where they are, of what the...
  12. rvallee

    Silent/soundproof living: tips and guides to achieve living in silence

    This website appears dedicated to people with sleeping disorders, who face the same issues of trying to eliminate noise sources so that when they finally manage to fall asleep, they won't be woken up: https://www.snoringsource.com/soundproofing/.
  13. rvallee

    Silent/soundproof living: tips and guides to achieve living in silence

    I have been furiously looking for a completely silent PC for a long time, so will report once I find something that fits the bill. Fanless PCs are the holy grail but there are good options coming out lately that use large heatsinks and fans. With fans size is everything, cheap small fans turn...
  14. rvallee

    Long Covid in the media and social media 2022

    As we know, Olympic and professional athletes, famous for: Being lazy Lacking self-efficacy and motivation Having crippling fears of: activity, standing, success Being women (hey at least they got that part half right) Giving up easily Catastrophizing about normal bodily senses, especially...
  15. rvallee

    Silent/soundproof living: tips and guides to achieve living in silence

    I just found out about SilenceWiki. Because of course there is a wiki for silence. It also has guides that look pretty comprehensive. https://silencewiki.com/ This one is especially difficult, a silent PC: https://silencewiki.com/reviews/quiet-pc-case/. It's all about moving parts. With SSDs...
  16. rvallee

    USA: NIH National Institutes of Health news - latest ME/CFS webinar 14 Jan 2025

    I really like Nath. I think he's the right person in the right place. I'd really like to know why he's blocked from actually doing anything about it. What the hell is happening behind the scenes to create this impossible gridlock?
  17. rvallee

    The biology of coronavirus COVID-19 - including research and treatments

    Well this isn't true. Most didn't expect it, even though they clearly should have, making this a clear failure of expertise. Some did, mostly based on other coronaviruses, as this seems to be a feature of the family. But especially so, the strategy of maximum infections is guaranteed to lead to...
  18. rvallee

    Parkinson's actometers again

    Well that's awkward given another paper discussed today about somatic symptoms disorder where they explicitly claim that this kind of fluctuation is a clear positive sign of somatization, even when there is an identifiable cause. Well, it would be awkward if people cared about consistency. The...
  19. rvallee

    CBT repackaged or a novel treatment? The Lightning Process compared with UK specialist medical care for paediatric [CFS], 2021, Anderson, Parker et al

    When a known mafioso sits at a table and everyone greets them warmly, it may not be a group of mafiosos, but it's definitely a group that is comfortable with mafiosos. I'm definitely not comparing the researchers to mafiosos, but when scientists choose to work in cooperation with people who...
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