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Isn't that kind of redundant, since cell death is inflammatory? It's not the expected cytokines, sure, but cell death gets the immune system going as well, especially infected cells since their content gets released and along with them many viral particles and proteins. At the very least this...

I know this works sometimes, but a main symptom really makes no sense here. It varies way too much not just between individuals but for individuals themselves. Applied to us it leads to massive misdirection. Although there are other diseases where it also fails. What is the main symptom of a...

I guess the editorial board of the Lancet is not aware of the role that the checks notes Lancet did in denying the health consequences of even mild infections, laughing it off as a small boo-boo and calling everyone who reports otherwise a dirty rotten activist. Is Richard Horton unable to see...

I don't understand this obsession with a main symptom. It makes no sense at all. This is the essence of oversimplifying something so much it loses all meaning. As if symptoms can be isolated, separate from the underlying illness. Where does this damn obsession come from?! You can't require...

That article was disappointing. I saw some comments praising it and frankly it shows how low the bar is. It's completely framed as a new and unique phenomenon, other than a passing mention that disabled people in general don't have it easy. Very lazy, frankly.

I'm not sure about that. And the people behind that report don't care either, but for a different reason. To them it's all psychosocial blah-blah-blah, they lump us all together anyway. Frankly it seems similar to the whole CFS and ME, one is observational, some people are very sensitive to...

Almost every mention I see in the direction of medical systems being broken is in the direction of more breakage: more biopsychosocial, less biomedicine. More "holistic", whatever that means, less scientific method. So no isn't even adequate, because the problem isn't even at zero, it's at...

The machine can see thoughts and other people. That's how powerful the machine is, it can read thoughts and see other people. It can see everything. Don't look, though, you won't see, only we do, just trust us: don't look.

This is especially awful given how relevant MCAS is in Long Covid. Yet again another clearly immunological phenomenon dismissed as psychological, the one pattern that applies 100% in medicine. It's always the same formula, done without any actual effort: Dunno = anxiety x millions Researchers...

Another author replied on twitter and I had some back-and-forth with him. Not especially open to hear anything contradictory, but he seemed genuinely oblivious to how this stuff is used in real life. Which is entirely possible, it's an area of medicine essentially devoid of genuine information...

Not quite true. They asked, it's just that the responses they get, symptom burden and disability, don't fit anywhere in their ideology, so they simply ignored it. Every time I saw something like this, either directly asking or in more free form, it's almost always the same: recovery means no...

Actually vexatious, in actual legal terms. Some countries have specific laws about using even the threat of lawsuits explicitly to intimidate people into silence. Unlikely it would go anywhere, but the costs and effort are the intimidating factor. LP can afford it, it's basically the cost of...

What does "properly negotiated" even mean? This is healthcare, not a hostage crisis or a business deal. There is no negotiation to be had here. Also nevermind that specially trained therapists literally do worse since they do more of the thing that fails. The more BPS-trained the more woo they...

They are going to get many earfuls about this from long haulers, how their singular obsession with calling this all "fatigue" is a bunch of nonsense, and never learn a damn in the process. They can simply ignore everything they don't like as noise. They can only think of their career and...

Yeah, I noticed. Doesn't make it any better, deliberate attempts at scientific sabotage by a medical association does not get better with time when the impacts are currently happening. This is why things are so broken right now, past failure becomes current failure. The class action lawsuits...

Possibly already known but just in case:

Seems like the main common thread is who is involved, the rest comes along as long as the right people work in the right conditions. What those conditions are and what decides who to involve is the hard part, but it really seems like this is the only relevant factor in the end. There is an...

Would have been nice to specify which way age correlates to OI: older patients have higher scores. Specifically, there is this: I'm not sure what it actually means. And it seems to only apply below a certain score (about mid-way): One small thing, but I do appreciate the fact that they speak...

Disappointing and misinformed. It's basically a puff piece on the Mt Sinai Hospital rehabilitation program, centered on a patient who eventually recovered by "increasing his tolerance for exertion" with an exercise program. He says he's recovered and sometimes works 16h days but still has...

More than enough to do better than the first draft, but I wouldn't expect that much from NICE.