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Way to find out that pain is one of the most common medical symptom. Groundbreaking stuff right there. What progress we have made since the 1950's, truly a marvel.

CSS is just a presumed mechanism with no theoretical basis and has never been observed or demonstrated. The questions are typically about illness so all this does is "find" people who ongoing illness, absolutely zero relation to whatever CSS is supposed to be. Literally all they do is ask about...

Almost like it would have required two versions of the guidelines, one that uses painfully legalese language that explicitly spells out every loophole that will be attempted, and another one in plainer language that leaves out those between-the-line details to the full legalese version. It's...

Those differences are trivial and statistically insignificant, there is far too much unreliability and most of that unreliability is in this exact kind of poor judgment where things like domestic violence will make it more likely to prefer one label over another. They still argue it, showing...

Well that's clearly false, they do endorse this and have for decades, when you remove the context. Here they are challenged by the events, that's the only thing that changed. But they do endorse this, in full, based on preconceived theories and use those in standard practice, coercively even...

What does it say about the people harping about bad science that they miss some of the worst science out there? Not much, frankly. It says they are not much good at this. Or strongly suggests that things are far worse than what they recognize. Or both. Although so far I am aware of exactly two...

The issue here is a simple case of "surely the people in charge will do the right thing when the truth comes out". It's truly unbelievable that such a thing could happen, and yet here we are. She can't process that medicine could genuinely screw this up, if only they knew. But this is exactly...

I have seen tons of that in the long haulers sub-reddit. It's not rare. Not one of the most common but it's definitely not rare, probably more common than some of the symptoms that have been acknowledged. One that is too easy to dismiss and never write down, or generally mixed in with "anxiety"...

The vast majority of people have no detectable traces of Coronavirus infection past a few weeks. This is the same problem as usual: ball went behind mommy's back, ball is gone, ball never existed. However they sometimes have detectable antibodies for other viruses, EBV comes up a lot. Actually...

Hmmmmmm. (X) Doubt.

Last visit to my GP, not sure why I bothered but it was mostly for excessive leg pain, we agreed that I probably do but it wasn't put in the record because it's pointless. I wonder how often that happens. I assume it's a lot. I pretty much assume it's the norm, with the weird obsession to reduce...

Just a narrative review so not really worth its own thread IMO. This was among the first disabling symptoms I had. It's barely discussed or acknowledged so far even though it's pretty common in LC. Probably the easiest symptoms to put to "anxiety". What a mess this has been, so many common...

There is no evidence for CBT "improving the quality of life" of pwME, it's way too vague and broad a concept to be evaluated anyway. This is just hopium. We need accurate things to be said, not people's wishes and dreams about what could be if magic existed in this universe.

Seems perfectly rational and directly related to the quality of services offered. Why would people adhere to useless treatments? That would be seriously bizarre. It seems to demand an irrational behavior while framing a rational response as faulty. Somehow the quality and effectiveness of...

Another fight for Covid long-haulers: having their pain acknowledged https://www.statnews.com/2021/12/02/long-covid-pain-not-acknowledged/ A universal problem but adds up a lot to the hypothesis that most, if not all, of the various chronic illnesses, including fibromyalgia, are immunological...

I can confirm, been following her from the start. Not always easy to express that on twitter, but she has the same objections we have. And in part because of how LC is dismissed as "just" that, when it's so much more than fatigue (and a different definition of it). Of course the problem is that...

The conclusion reads more like a vague mission statement from a tech start-up that gushes about "we're family" and stuff like that than a, you know, conclusion. What is "holistic" anyway? Seems about as definable as pornography. It all really seems to derive from the desire to have a healing...

Lots of pwME wear them all the time and have for years. It would be a selective factor for people who can't tolerate them but they're common enough that it doesn't make much sense to get blocked by this. Especially when the "treatment" is an exercise program.

I haven't read in-depth but am curious about how candid they will be about it to the patients, seeing how they define it here. The level of candor from these people is basically "snitch in prison trying to worm out of a bad situation". Then again PACE did the same, explicitly had the illness...

Hey, it's the new Malibu Stacy, it has a new hat! New hat! Well, no actually it's the same hat but it says "New hat!" on the box so it must be true! Either this person has no awareness whatsoever of the history of so-called psychosomatic illnesses and how they have been defined for well over a...