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It's the level of evidence below "some people are saying". It's not even that, because no one would say that directly, as there is no evidence, instead it's vague hand-waving as if those things were being "considered" all by themselves, a passive thing one can only observe. It's not so much...

I am unable to find the thread for the NIH RECOVER initiative so have to post it here, or PASC, or however name the thread uses. https://patientresearchcovid19.com/open-letter-regarding-the-recover-initiative-to-study-long-covid/ Basically, the NIH needed oversight for this program. There is...

A randomised controlled trial testing the efficacy of Fit after COVID, a cognitive behavioural therapy targeting severe post-infectious fatigue following COVID-19 (ReCOVer): study protocol https://trialsjournal.biomedcentral.com/articles/10.1186/s13063-021-05569-y Same basic formula as always...

This is kind of funny with how common it is for deniers to say that those "labels", like ME and fibromyalgia, are not helpful. Well, no shit they aren't helpful if they're systematically misused. Even the most useful things are useless when they're used incorrectly. Just look at the genius over...

Not much point to posting this other than there is clearly an organized campaign happening, uses roughly the same wording. The first sentence is identical. Carson is another one of the gang, so it doesn't seem to have much outside support, not visibly anyway. I'm sure there is more coming.

Our only hope is research. It has already been taken away from us. So this argument is offensive twice over. This is the result: millions of broken lives. I honestly can't believe this is happening right alongside Long Covid. Shows how we did not stand a damn chance of there ever being progress...

So NIHR is now hyping the null results of ACTIB, basically lying by omission in suggesting "benefits" when there were none. Clearly paving the way for the commercial venture.

This whole debate is absurd. There are things modern medical technology can see and understand, signs, and things it can't yet, which we call symptoms. That's it, that's the whole of it. The problem is that medical professionals have been speculating on what they can't see for, well, ever...

NICE be like: "let's have meetings and roundtables so everyone can have their say and present their concerns, surely everyone will see reason here about how the process was painfully followed". Meanwhile: Honestly at this point regardless of what this means for us, this guy needs sanctioning...

Everyone forgets the second half after "a few bad apples". It's usually used incorrectly to mean that it's OK because it was only a few, when the whole point of the saying is that it only takes a few to corrupt the whole thing. The whole batch has been spoiled. Hell, the whole orchard is.

The first words of the abstract really don't make it any better.

Hey, let's not sell the chickens before they hatch. None of the prior eggs have hatched, it's kind of a trend. Looking forward for the very first but this whole celebrating before anything's been done is an especially annoying trope because nothing ever gets done in large part because of that...

Yes, sick people, famous for having lots of sex. Could have been informative if they had asked about sexual habits and whether they are affected by their being ill. But that would have been informative and would not have allowed to opine about how sick people with a broken sexual life have less...

Wow. So if you ask sick people about their health, they will report poor health. And if you ask healthy people about their health, they don't. And of course it's the core assumption that does all the work: they assume no actual ill health in the sick people. So basically studying their own...

That's not an update, at best it's a rephrasing that says the same things but pretends it checks the boxes it needs to check. And the SMC is not a credible scientific authority, it's a PR organization. Sure, they deal with science journalism, they do not themselves do science and are therefore...

It's really not getting any better, uh? The focus on "distressing" is seriously bizarre, it's like none of these people have ever had a sick day in their life and simply can't process the concept and what it means. Of course the choice to limit this to fatigue is basically the tell that it's a...

When you don't know that "chronic fatigue" is actually serious and shouldn't ever have been dismissed. Alternatively it could be dismissed again so the cycle repeats again and again... Hard to think of a charitable interpretation of that quote. And if this is an official reason... ready the...

The "therapies" appear to be a mish-mash of many different things with no other relation than being delivered using VR. What should it matter how a bunch of disparate stuff is delivered if they're all different? It's nonsense to say that VR therapy is a therapy anymore than it differs doing it...

Uh, citation? Wat? This thing where medicine treats symptoms in isolation, detached from their context, has become a tragic farce blocking most of the progress that could have been done already. Complete nonsense. Context matters, damnit.

All of which will be familiar...