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  1. rvallee

    Smartphone-based exercise intervention for chronic pain: PainReApp randomized clinical trial protocol, 2021, Moral-Munoz et al

    Totally consistent. It's the latest craze and also no one's buying it. How does it make it sense for something to be effective yet people stop using it? It doesn't. At all. It's essentially an appeal to authority: authorities are using it, therefore it must be good, otherwise they wouldn't be...
  2. rvallee

    Independent advisory group for the full update of the Cochrane review on exercise therapy and ME/CFS (2020), led by Hilda Bastian

    Underselling it. It's amazing. Thank you, Caroline! Love to use Garner's words trashing Cochrane against him. Not so much as a gotcha but to get Cochrane to at least acknowledge his unprofessional behavior and how it reflects poorly on them.
  3. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    It appears that the lead researcher on one of the $470M NIH initiative is a psychiatrist, which I guess means they have little intention of actually solving this. The NIH does seem willing to waste a billion dollars. Mount Sinai Named a Lead Site for Enrollment in Nationwide Study on the...
  4. rvallee

    BPS attempts at psychologizing Long Covid

    The most amazing thing here is that the public health messaging from the start, and still is, has been that Covid is mostly harmless to those below 60, in part because of this belief system. So much emphasis on mild illness, in addition to asymptomatic cases being rather common. As a result, the...
  5. rvallee

    Post-infectious disease syndrome, 1988, Bannister

    Uh, hmmm, yeah... Yes, it rained, yes, there is water on the ground, but who knows if the 2 are connected? Could be astral projection, I guess? Maybe spontaneous liquefication. Who knows? Could even be ghosts! You hear hoofs? Think howling monkeys, of course. This thing where not having the...
  6. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    They really need to talk with patients. Not to. With. This is awful. Complete caricature of what it's like to be ill. Diagnoses are "validating" because they are the ticket to everything happening in health care. It's not an abstract, it's a requirement without which nothing happens. That...
  7. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    I really don't like where this is going. This is basically the nightmare scenario disguised as a blessing, because 99.9% of health care services would not see it as a problem: a variant that is highly contagious, causes less acute illness of the "needs hospitalization" kind, but is even worse at...
  8. rvallee

    Microbiome–host systems interactions: protective effects of propionate upon the blood–brain barrier, 2018, Hoyles et al

    I don't understand the weird obsession with the "gut-brain axis". Every organ in the body is directly connected to the brain, literally everything has to. Never hear about the liver-brain axis. Or any other combination. The interaction between the brain/nervous system and the immune system...
  9. rvallee

    News from Aotearoa/New Zealand and the Pacific Islands

    Prepare. Pre, meaning: before. Nope, not it. 2 years into this is definitely not before, it's far after.
  10. rvallee

    United Kingdom: Newcastle-upon-tyne Hospital Trust

    And another one for the file of so-called lessons learned from the AIDS crisis. We may be vindicated with time, but we will have been just as hated, if not more because it has lasted far longer. And that anger was explicitly and disgustingly used against us, just like it was. Zero lessons...
  11. rvallee

    Ed Yong: Health-Care Workers With Long COVID Are Being Dismissed

    It's pretty clear that medical information is communicated top-down. The top hasn't communicated this because they are in denial. Medicine is seriously lacking in leadership, there just isn't any.
  12. rvallee

    BPS attempts at psychologizing Long Covid

    He says things his medical peers want to hear. Same as Sharpe and Wessely or Stone. Nothing special, certainly not a luminary. These people are in the marketing business and there's plenty of demand for it, they don't even have to make any effort at it and there's basically infinite money...
  13. rvallee

    News from France

    There is a legislative debate today in the French parliament for a LC resolution, 2nd debate. It appears to have unanimously passed: I don't know much about French politics, legislative resolutions are typically non-binding so I have no idea how much bite this has. I assume none at all...
  14. rvallee

    United Kingdom: Newcastle-upon-tyne Hospital Trust

    You know what they say, when reality conflicts with your model, stick to your model, put fingers in your ears and go LAH-LAH-LAH-LAH! The model is everything and reality is just a pale reflection of it. The ends justify the means, all the means. Oh, wait, no, it's the exact opposite. Although...
  15. rvallee

    4th International Conference on Functional Neurological Disorders, June 2022, Boston University [was originally scheduled for 2020]

    It would be great to bring this to the attention of long haulers, since they will be covering LC as conversion disorder. Seems to be the same idea with vaccine reactions, especially problematic considering how much more serious it is for pwLC and pwME. They have to know about these things and...
  16. rvallee

    Peppermint Oil Treatment for Irritable Bowel Syndrome: A Randomized Placebo-Controlled Trial, 2021, Nee et al

    That's one interpretation. The other, more rational, would be that whatever they use to evaluate clinical significance is not reliable, or natural improvements are common enough to occur, which would be consistent with a more likely microbial infection being dealt with over time, making the...
  17. rvallee

    The relationship between types of life events and the onset of [FN] (conversion) [D] in adults: a systematic review.., 2021, Carson, Stone et al

    Hell I've seen good events being twisted into being bad, like getting a promotion but now that's just too much stress, or something like that, no matter that, no, it's not, in fact it's a very positive thing. They don't care. Ideologues never care about being wrong. Or about what they're doing...
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