Search results

  1. rvallee

    The Times: My Mother, Munchausen’s and Me by Helen Naylor review — the tyrant in the sick bed

    Garbage article from The Times that uses ME as a punching bag and misrepresents everything. https://www.thetimes.co.uk/article/my-mother-munchausens-and-me-by-helen-naylor-review-7v8ts3w77 However, starting abruptly in 1991, when Elinor was in her thirties and Naylor was seven, her mother...
  2. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Good article from a GP with Long Covid. Other than not naming ME but mentioning PEM... But I think she knows since she tagged Doctors with ME on Twitter, so it's odd that the article does not mention anything about this being an old problem. Focuses mainly on dysautonomia and neurological...
  3. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Today in tales from dystopian nightmares, a discussion of Long Covid between health officials in the Netherlands and patient advocates has been pushed back to next year... because of the high number of infections. Which will increase the problem further. When you don't understand the problem to...
  4. rvallee

    News from France

    French medicine continuing to push very hard for psychosomatizing Long Covid. The narrative is pushed everywhere.
  5. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Thread on LC with many sources. Good overview of the issue so far.
  6. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    This is probably a very nice public health message but the audience that needs to hear this is not watching this on television and will not care for this message. It's medical professionals who need to hear this, and also for those empty words to have substance. Health care is completely...
  7. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Many annoying things in this article, including people musing how many will need cognitive rehabilitation. Going 2 years into this and they can't even move on from their delusions, they still cling to their failed models no matter how much reality punches them in the face. It's a shame that the...
  8. rvallee

    Covid-19 vaccination experiences

    Seems reasonable but seeing behind the curtains how medicine works for the last several years makes a strong compelling case that it could be just as common with other vaccines, medicine simply has no way of knowing and probably doesn't even want to know, given how problematic it would be for...
  9. rvallee

    BPS attempts at psychologizing Long Covid

    More incoherent ramblings from people who are themselves the problem, arguing the problem as a solution to itself. Medicine has refused to apply science to this problem despite having decades to do so, and so the solution can only be more of the same pseudoscience that is reaching a crisis...
  10. rvallee

    News from France

    Still the framing of fatigue... ugh. Medicine seriously has to deal with the fact that sick is a perfectly acceptable word and that often it's the only one that applies.
  11. rvallee

    Is Cognitive Change Necessary to Alleviate Symptoms in Patients With Functional Somatic Syndrome?, 2021, Maroti and Johansson

    See also: "lie detectors". They detect something. It's an actual objective measurement. Does it detect lies or honesty? Of course not. An effect is irrelevant, it's easy to have "an effect". "The book moved on its own" is an effect that can be argued to be a ghost. Means nothing at all, people...
  12. rvallee

    UK NICE 2021 ME/CFS Guideline, published 29th October - post-publication discussion

    I wonder how the people at Cochrane are handling it, especially those involved with decisions about us. What do they think of one of their section editors and major figure promoting blatant quackery and basically bigotry against patients? I'm not sure I'd like the answer to that. Especially...
  13. rvallee

    Social position and functional somatic disorders: The DanFunD study, 2021, Signe et al

    And obviously large puddles on the ground lead to large clouds. And famine is what causes crops to die in the fields. Are these people aware that being sick as a young adult leads to exactly this? Again they are looking at the very obvious and normal outcomes of a situation and simply can't...
  14. rvallee

    UK - NHS England online tool and clinics for long Covid.

    What is it when a "clinic" chooses the easiest, most likely to "recover" patients, regardless of what they do? A sham, is what it is. They want the salary but they don't want to do the work. Document here:
  15. rvallee

    Factors related to educational adaptations and social life at school experienced by young people with CFS/ME: a qualitative study, 2021, Similä et al

    They hear patients saying that health services don't understand anything about the disease, that it's the main obstacle to improving things, and their conclusions seems to be that they are unable to understand it any better that and therefore nothing more can be done on their end. How are these...
  16. rvallee

    More Than 100 Persistent Symptoms of SARS-CoV-2 (Long COVID): A Scoping Review, 2021, Hayes et al

    If it's not done systematically I don't see how it could be useful. If it were done systematically it very likely would, but it wouldn't be obvious until it's done systematically for long enough, and it isn't done since it hasn't been done yet and therefore not judged to be useful, since the...
  17. rvallee

    News about Long Covid including its relationship to ME/CFS 2020 to 2021

    Nothing groundbreaking or new but an interesting quote to follow up on. Here of course we meet the problem of denied disability. It's not that they aren't disabled, it's that they aren't recognized as disabled. The outcomes for both scenarios are of course vastly different. Long Covid’s...
  18. rvallee

    More Than 100 Persistent Symptoms of SARS-CoV-2 (Long COVID): A Scoping Review, 2021, Hayes et al

    Many of those symptoms are present in the acute phase. But they wouldn't know that because it would require listening to the patients and taking their reports as useful information outside of the specific context of in-patient admission. In the acute phase of an infectious illness, medicine has...
  19. rvallee

    NHS England Long Covid collaboration: Assessment Tool Testing - call for beta testers

    Lots of bad comments about this so far, looks heavy on the BPS.
Back
Top Bottom