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Thanks for everyone who worked on this. Some findings I found interesting: 83% of patients were female The majority, around 60%, described their illness as fluctuating. This group was much larger than those who indicated improving, getting worse, no difference of relapsing/remitting. Age was...

This doesn't sound like a result, it's part of the definition of CFS.

One of the Rosmalen-group research projects aims to do a GWAS with a worldwide collaboration. I wonder if they have been in touch with the DecodeME team about this? @Andy https://projecten.zonmw.nl/nl/project/mecvs-genetica-onderzoek-naar-de-biologische-oorzaak Another project will try to...

I suspect the controversy is mainly about Rosmalen being one of the leaders as she was interested in a psychosomatic interpretation of ME/CFS in the (recent) past. I do think that her Lifelines cohort forms an exceptional opportunity because it includes longitudinal data of people before they...

Thanks for sharing. Sounds like good news. The text of the Green party says that the motion was supported by all parties. I suppose the next step is to get the resolution passed in the plenary sitting of the parliament (not just in the health committee). Also: does anyone have a link to the...

Doesn't look good but it is hard to judge when we don't have info about what has been decided. ZonMw told the patient organisations that on Tuesday 25 April they will announce their funding decision so we will know more soon.

The frustrating thing is that so few authors consider the possibility that there are diseases who's pathology have not yet been discovered due to limitations in our current medical understanding.

There are some interesting paragraphs in this paper, for example: "What the BPSM is, then, is essentially the general proposition that illness involves biological, psychological, and social factors [...] The model’s three domains include more or less everything that impacts human life. The BPSM...

I see how this would result in fewer covid cases and a lower absolute number of deaths due to covid but not the lack of difference in mortality rate between those who had and those who did not have covid-19.

Thanks. Could you explain this a bit because I would think that this was rather in the beginning of the pandemic when not everyone got vaccinated and the death toll in other countries was quite high. How come the situation was different and could this have also affected the number of long covid...

I also noticed this: "Among persons testing positive, 40 (0.05%) died ... Among persons testing negative 676 (0.06%) died..." So there was no increase in mortality in the Sars-Cov-2 positive group even though the testing period was quite early in the pandemic (August 2020 to August 2021).

These seems to be the main findings: So the prevalence of general symptoms at 6 months was around 150-175 for those who were untested or tested negative while it was around 300 per 10.000 for those who tested positive. This is around 1.5% and 3% which are remarkably low figures. The big...

Have the authors clarified why they left out Recovery Norway in the paper? Not sure if it breaks any formal rule, but it is not very transparent if Recovery Norway was involved in the project, to not mention them at all.

I wonder to whom he was trying to explain this.

Interesting that the Fukuda CFS criteria showed a clearer difference compared to the WHO-definition of Long Covid.

Link here: https://www.frontiersin.org/articles/10.3389/fmed.2023.952278/full Based on the abstract, this does not sound like a serious paper to be honest.

This large study found no difference in NK cell cytotoxicity between ME/CFS patients and controls. https://www.s4me.info/threads/natural-killer-cytotoxicity-in-myalgic-encephalomyelitis-chronic-fatigue-syndrome-me-cfs-a-multi-site-of-me-cfs-mcam-sub-study-2023.32724/#post-468767

Another important issue highlighted by Carl Bergstrom: Answers from one query seem to spill over into another. This was using the new Bing AI feature. https://fediscience.org/@ct_bergstrom/110082371618305666

Looks like a positive initiative.

Among the things they found with the Raman spectroscopy were increase in tryptophan and tyrosine, elevated glycerol levels, reduced cholesterol and cholesteryl esters, and reduced glycogen levels. But it seems that most of the differences applied to ME/CFS and MS patients compared to healthy...