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Long covid has made the idea of persistent infection much more credible. One argument against persistent infection in ME/CFS has been that as the health declines, one would expect the pathogens to eventually win and cause a rather obvious infection. Maybe this is a stupid idea but: is it...

I wonder about this too. FND has some patient support now, but in 20 years, will the majority of FND patients rebel against what they perceive as a nonsensical and pseudoscientific model of care in the same way ME/CFS patients did?

I read the article by FND portal. I see nothing in there that would validate a diagnosis of FND. The person has some neurological illness that doctors cannot diagnose. If FND was a neutral term that meant "unexplained neurological illness" it would be acceptable but it's got all this...

I've had an arginine infusion as part of a medical test and it made me feel good. Maybe that's got something to do with NO?

The outcomes seem sensible to me.

Can we even choose an identity? I have repeatedly seen comments that lecture people with chronic illness for identifying as being chronically ill, or disabled. These comments seem to reveal the belief that identity is a choice, and that identifying as chronically ill is a bad choice. If you're...

One might call it "chronic EBV"?

This is very possible, as I don't have contact with that age group and little exposure to its social media.

Not sure about this. I generally take a skeptical stance about claims of anyone faking illness for attention or gains. This must surely exist as phenomenon but I think it's more likely that the people so accused have real problems that are just misunderstood and don't fit the mental model of...

I'm not sure how anyone in touch with reality could come to the conclusion that ME/CFS is the result of people wanting an identity and meaning through the status of disabled person. Maybe less fantasizing, more talking to real people is what he needs? What does he mean with "disability as just...

What is meant with disability as identity? Does it just mean viewing myself as disabled? _______________ Go to this thread for further discussion on this topic: 'Disability as identity' - discussion thread

What is meant with disability as identity? Does it just mean viewing myself as disabled?

Hi Accurately diagnosing CFS is not easy and it becomes more difficult when the person is mildly affected. In my opinion in your case one should maintain some suspicion that it's something else. There is certainly some similarity to CFS. It sounds like you need validation and encouragement to...

5 days have passed since the biopsy. I can walk without problems in the house, but I'm not supposed to use the leg much until the sutures have been removed. I've also become more tired than usual and need more naps during the day. I'm not sure why. It didn't feel like the biopsy caused a major...

I took part in this study and had low manganese.

Very useful observation, and good to have some statistical modeling. I've been thinking something similar for a while. My guess is that the misdiagnosis rates may be as high 25% even in studies conducted by people who are familiar with the topic. The remaining ME/CFS cases may actually be...

These microclots can't be the cause of PEM if they're found in other diseases not associated with PEM.

Since RA is not generally associated with PEM that suggests these microclots are not causing PEM (at least not alone). If we ignore that for moment, would it be plausible for PEM to be roughly this sequence of events? 1. A person that was resting begins an activity. 2. The activity also causes...

Having thought about this, I don't care if it makes no sense or doesn't fit with established knowledge. We need a replication to confirm or refute this. ME/CFS seems to be an illness where established knowledge is of limited use because it seems to be in its own distinct category, with some...

I hope this means that there will soon be a replication attempt. It does look like the kind of finding that would help us a lot in making sense of what is going on. In my opinion, microclots that impair microcirculation to some degree seems like it could fit with an inability to tolerate...