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Thread on Annie Hopper stuff: Annie Hoppers Dynamic Neural Retraining System Thread on Lightning Process (among many on the forum): Lightning Process - discussion thread That's a really bad start to a paper. I find it really hard to understand how a scientist, actually a celebrated...

Towards a Better Understanding of the Complexities of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome and Long COVID 2023,Tate et al A disappointing new paper from Warren Tate. Sadly, it looks as though we have to add Professor Tate to the list of people who were initially a source of hope...

Hmm, six rabbits, and they are claiming that they can make a POTS model by injecting peptides from adrenergic receptors, and then they can ameliorate the heart rate increase upon tilting and inflammation by clipping leads to a TENS machine to the rabbits' ears. We've seen some unconvincing...

Maybe a portable speaker linked to your laptop by wifi?

Both of those excerpts still appear in the article that's online now. The first one appears early in the article, the second one is about Wessely.

Yes, I used such an app on my laptop just yesterday, there was a choice of noises including birdsong.

Indeed. Both those reviews I linked to reported that past studies have been too small and otherwise flawed. There needs to be funding for sufficiently well powered studies.

Yes, I don't mean to downplay the seriousness of such a scenario (which sounds to be a bit different from the situation that has been reported in this thread) but there may be family and friends and medical professionals to advocate, it may be possible to sign petitions, letters to MPs, provide...

The above paper about polio survivors concluded: There's this 2020 review which did not report evidence for increased brainstem volume. Neuroimaging characteristics of ME/CFS: a systematic review. Shan et al. 2020 Specifically, there is the supplementary table with summaries for each study...

I think there is probably more than one rational response, the more legal of which includes political campaigning to change things.

Here's another sample of normal brainstem volume in 182 healthy subjects. x axis is age. Sorry for the poor quality image. Most people had brainstem volumes between 22.5 and 27.5 cm3 (1 ml = 1 cm3). Maybe there was something unusual about the measurement approach in the Thapaliya study?

Improving Accuracy of Brainstem MRI Volumetry: Effects of Age and Sex, and Normalization Strategies That paper found that estimated brainstem volumes didn't change much with the scanner or protocol used. From a sample of 110 people: Using these figures, the LC and ME/CFS results from this new...

Hmm, Barnden is a good researcher, but, as the research team acknowledges, the sample sizes are small. Also, the gender ratios are a bit skewed, there are a higher proportion of women in the healthy controls than in the LC and ME/CFS cohorts. I expect they adjust brain volumes for...

I suppose even dyed-in-the-wool BPS proponents might feel that they do really care about people with ME/CFS. I'm sure Garner feels as though he is protecting people with ME/CFS from ourselves and from those nasty loud activists who want to debunk effective treatments. I guess they think the...

Re diagnosis, they also have two clinicians both confirming the diagnosis. They are choosing controls with a sedentary lifestyle. A nice way of dealing with new cases of ME/CFS, some of which will be after Covid-19, I think. I think the training and validation is for the data. So, all the...

Axillary temperature at first visit 37.2 degrees Axillary temperature at last visit 36.3 degrees A lot more weight than seems warranted is given to two measurements of temperature, that really aren't very extraordinary. I think we may have commented about Oka before, the psychogenic fever...

Presumably this is part of Dr Shan's work - he's at the University of Sunshine Coast and has done a number of brain imaging studies in ME/CFS. I've added a 'Shan' tag. His work has been pretty good, and non-BPS.

There's an awful lot of fluff there, with not one, but two vicious cycle diagrams and a lot of what I find to be awfully patronising. Perhaps the clinician was able to offer some useful advice, although we just have their word for it. Did the patient actually improve? I think that's...

Just as an aside: That quote illustrates the difficulties with the 'sleep problems' or 'non-restorative sleep' criteria of the more demanding ME/CFS criteria. The patient seems to have PEM; her illness sounds very much like ME/CFS. And yet, different interpretations of the sleep criteria can...

It's deeply frustrating that here we are, trying to discern if there is any scrap of relevance in an anecdote about someone recovering from Long Covid at around the 6 month mark, when the odds of recovery from persistent symptoms following a covid-19 infection must surely be high. That said...