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Thanks for posting this @SNTGatchaman I acknowledge the important gift the people who were the subject of this study and their families made to science. I think we need more brain autopsy studies like this, especially of people with Long Covid and ME/CFS, (and of women with these conditions -...

Very nicely argued @Robert 1973. :thumbup:

Links to forum threads on one completed study: Oxaloacetate Treatment For Mental And Physical Fatigue In (ME/CFS) and Long-COVID fatigue patients, 2022, Cash and Kaufman tldr (study has many issues, not least of which is that the data was analysed only by the person (Cash) who stands to...

I think that's a good point. As I went through the services, it seemed some of them were being provided by private companies that also provide physiotherapy and mental health services. People are profiting and, with Long Covid, the gravy train rolls on. It would be very interesting to look at...

This thread is for discussions about the delivery of ME/CFS care in the UK. We have other threads for individual UK clinics. So, the topic you suggest is fine for this thread. A comment from me, based on collecting up the posts we have about individual clinics over the last couple of days is...

The evolved relationships between host and pathogen are amazing.

Argh. :banghead: Hypocortisolism - it seems that so many people want this to be true, even though there is no evidence. I hoped for better from Leonard Jason. There's further discussion in some of the threads tagged with 'cortisol'.

There's more on Dr Alastair Miller's views on ME/CFS here: (Not a recommendation) Alastair Miller on CFS It's not clear to me how much involvement he has in the current North Cumbria ME/CFS Service, but he is certainly very involved in BPS circles.

Linking to this post; Miller remains very much involved in pushing the BPS line:

Another 6 months on, and the website link has changed, but it's still under construction. You won't find it by searching on ME/CFS, but CFS works: https://www.rlbuht.nhs.uk/departments/medical-specialisms/chronic-fatigue-syndrome-myalgic-encephalomyelitis-cfsme/ There's no content there, just...

Note from the moderation team We have decided to keep this thread just for general discussion about ME/CFS services in the UK. The first post of this thread now lists the threads we have for specific ME/CFS services in the UK: ME/CFS services in the United Kingdom Use those threads to post...

2022 https://www.pnsociety.com/i4a/pages/index.cfm?pageid=3313 AFM & GBS GRANTS The NIAID, NINDS, and NICHD have jointly issued a Notice of Special Interest encouraging new applications and request for supplements to existing grants (competitive revisions or administrative supplements) to...

Two posts about BBC items about a person with ME/CFS' experience with the North Cumbria Integrated Care Trust have been moved here: United Kingdom: North Cumbria Integrated Care Trust