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Really struggling with a response and am very grateful to SM4and others for all their collective efforts. FYI I contacted NICE and requested a discretionary informal 2 week extension to the 5th January due to personal and other extenuating circumstances. Was told that was not an unreasonable...

Could be useful as it is a new publication? Contains the Vink Vink-Neise paper as well. https://www.mdpi.com/books/pdfview/book/2100 Sciprofile link Brett Lidbury and Paul Fisher (Eds.) Pages: 202 Published: March 2020 (This book is a printed edition of the Special Issue Biomedical...

Forgive me if this has already been flagged up, but I thought it might be useful for you to use and quote? https://www.mdpi.com/2075-4418/9/4/124/htm Open AccessReview Work Rehabilitation and Medical Retirement for Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Patients. A Review and...

In the light of recent events etc, e learning gems ( withdrawn) etc etc, best we keep our eyes on the ball…… So, FYI, related to 2007 NICE RCGP’s and New NICE and GPs…… https://rcgp-news.com/49LXZ6S4-5E5347081270F2374Q1XVDC4E2FEA9E06EC1C3/cr.aspx 'A fresh approach to general practice..’ So...

Sorry Andy. I apologise if you thought I was directing the word "noise" at S4 ME submission. I was not. Nothing could be further from the truth, and I knew how much consideration and effort and professionalism you have put into it. By 'noise' I meant the likely shear volume of responses...

I have same thoughts Peter; 'I struggle to get my head around larger quantities of information and gain an understanding of the overall structures '/ In producing such a thorough and detailed response to NICE’s draft do we risk losing a sense of which issues are the most important to us? -...

I totally agree!

Sadly, there isn't, as the late wonderful Connie Nelson set up LocalME on Yahoo groups in about 2005 as a closed 'safe' community for Local Group coordinators to provide feedback and local advocacy. Connie was ably assisted by others, some sadly who have also passed recently. (We all left...

Further history/evuidene that NICE have form! - 2017 example Consultation dates: 10 July 2017 (9am) to 24 July 2017 (9am) * The Consultation breach has been resolved; NICE Enquiry (our ref EH82669) 11/07/17 I have had to challenge the NICE Consultation period 10th-21st July* and secure an...

"Just seen that this has been added to the current guidelines, which can be found here, https://www.nice.org.uk/guidance/cg53.." Good news with NICE now waving a clearly visible white flag. Well done to all who petitioned them! LocalME and the 25% Group, (like MEAction, Invest in ME and...

Moved post This is a Royal Society of Medicine Webinar https://www.rsm.ac.uk/resources/rsm-live/ Food for thought? Episode 54: One year on, what have we learned? Date: Thursday 10 December 2020 Time: 12:30pm - 1:15pm GMT Dear Sir/Madam, A year on from the first recorded cases of COVID-19...

The above has history, form and legs! http://80.6.88.110/publication/download/chronic-fatigue-syndrome-in-children-jcg0051-v2-id-1283

Cut and past into Google search file:///Users/barb/Downloads/Chronic-Fatigue-Syndrome-in-Children-JCG0051-v3.pdf (Facebook) is blocking me uploading this as a pdf file. Attached belwow

https://elearning.rcgp.org.uk/course/search.php?search=elearning Chronic Fatigue Syndrome Myalgic Encephalomyelitis This online course provides GPs and other primary care practitioners with an overview of the presentation, diagnosis, assessment and ongoing management of chronic fatigue...

Which was miraculously withdrawn this week.......

Posted elsewhere mods so feel free to move consolidate! Mod note: Go here to discuss this Suffolk guideline https://www.s4me.info/threads/me-cfs-services-in-the-uk.5625/page-10#post-307648 Joint Trust Guideline for the Management and onward referral of: CFS/ME (ChronicFatigue Syndrome /...

Oh Yes I did! I have no idea why emojis appear as they should not!

Outraged at Norfolk CCGs and East Coast Community Health slipping this one through- read it and weep! cc Tuller, Edwards, Speight, LSHTM, Kerr, Pheby, MEA, plus others BCC --------------------------------------------------------------- Joint Trust Guideline for the Management and onward...

FRom 2017, jane.gizber@nice.org.uk Communications Director @ National Institute for Health and Care Excellence (NICE) surveillance@nice.org.uk To Surveillance Team, Today as a registered stakeholder for NICE, in good faith, I have composed and prepared my response to your consultation...

NICE and the RCP are in breach of Government Guidelines on Consultation"The Compact" see below, I would suggest! Regarding Consultations, I have dealt with this conundrum before, including when NICE issued their edict in 2017 and I made a formal complaint. So suggest, we challenge the current...