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I know a sure-fire cure for brainfog: just wait. Eventually you'll be dead and your brainfog will stop. Yah, not really helpful either. :rolleyes:

I fit the Canadian and International criteria for ME. I did have neuropathic pains (still do when ME is worse). I definitely had PEM. My ME might be non-standard, but I've read other people's replies about not having physical limitations, so I'm not the only one. Muscle problems might be a...

When I heard that the vaccine was now available in Alberta for my age group with chronic health conditions, I wondered whether ME would qualify, and whether my doctor would write something to say that I might have it. Since I'm not in any great rush to get the vaccine, I'm not worrying about...

For me it is. There are a bunch of tasks on my 'todo list' that I just don't feel like doing. However, if it became critical to do them, I could, even if it required strenuous physical work. The limitation seems cerebral: tasks requiring lots of cognitive effort, or ones with frustrating...

As far as I could tell, my ME didn't cause any effects on my muscles. I seemed to maintain the same level of strength and endurance. For me it's more of a limitation of willpower to make myself do physical or mental tasks. I'm just guessing that I wouldn't show the reduction in the...

It's not quite that simple. The perception of fatigue or pain involves signals from sensors, and communication through the nerves, and processing. Problems can arise in any of those links. Neuropathic pain, as I understand it, involves normal levels of sensor signals, but the processing cells...

I agree that it looks like cherrypicking, and only a teeny tiny cherry at that. I also agree that "perception of fatigue" is correct for the title. If they're not measuring actual physical or mental fatigue, their data is only people's self-judgements about perception of fatigue. ME doesn't...

I wonder whether this only applies to a subset of PWME. That would need a large study.

Yes, that's true, but with ME, what makes a person worse depends on the person, so there is no list of what everyone should avoid. Strenuous physical activity doesn't make my ME worse; I'd probably be worse off if I avoided exercise. There are foods and nutrients that make my ME worse, but...

Until they come up with a reliable set of limits for exercise, I think we should all avoid excessive exercise. Just to be safe. :)

Procrastination in action. Could they have prepared better for post-viral problems, or for a global pandemic in general? Of course, but budgets are quarterly or annual, and the tens of trillions of dollars extra for being unprepared won't show up on their budget sheets. Prepare for lots of...

I don't know much about the other disorders that were used for comparison, but I expect that most of them have actual medical services available: tests and treatments. We have nothing but the forums. If a new discovery about ME comes out, these forums are the easiest place to find out about them.

Just what have we learned about ME that can be applied??? Avoid things that make your symptoms worse? GET/CBT won't help? Don't expect actual help from the medical system?

I'm pleased to see that they're taking the need for CFS samples seriously.

The problem is that we don't yet understand ME, so we can't definitively say that some symptom is or isn't due to ME. I haven't heard anyone report tight muscles as an ME symptom, but that doesn't mean that it can't happen. Hopefully the right specialist will be able to figure out why the...

Looking for patterns can be a powerful tool ... but it can also lead to silly things such as random patterns of stars in the sky being interpreted as people or animals whose characteristics affect your daily life. We do need ways to measure fatigue. I think it will require a lot of research...

I agree with arewenearlythereyet: this 'Nobel-candidate' hypothesis seems to boil down to: "something in the body is malfunctioning!". Unless there's an effective "repair homeostasis" treatment, it's not a useful hypothesis.

Nice to see that they included covid-like controls.

Negative results are useful too. :thumbup:

Someone should do some studies of microbiomes of patients with broken bones, gunshot wounds, or other such trauma. Will they find changes in the microbiome? I expect they will. Eventually, they can come up with some methods for determining when microbiome changes are actually caused by a...